Recent content by jkp

Hi all, I haven't posted here in quite some time but the people on this forum are so supportive. When I posted here everyone felt like family. My Wife and best friend "Susan" passed away Saturday night at 10:30pm. I was by her side along with her nurse. We watched as she took her last breath...

hopefully this will help Hi Mike27 This would only work for male PALS. When you're going out for the evening, have your caregiver put an external catheter and legbag on. Then when you gotta go just go and the leg bag will capture the urine. When the legbag gets full the caregiver jus puts...

We wanted to wish everyone here Happy Holidays and a very happy New Year. Jon & Susan

Chris I'm very sorry for your loss. This close to Christmas must be much harder for you. We will keep you in our prayers. Jon

Congratulations! Hi Al, Congratulations. There's nothing like holding a new baby Granddaughter! I'm very glad Mother and Granddaughter are doing well. Jon

Another Reaching the end of a job... Reaching the end of a job interview, the human resources person asked a young engineer fresh out of MIT what kind of a salary he was looking for. "In the neighborhood of $140,000 a year, depending on the benefits package." "Well, what would you say...

My two cents worth A blonde calls her boyfriend and says, "Please come over here and help me. I have a killer jigsaw puzzle, and I can't figure out how to get it started." Her boyfriend asks, "What is it supposed to be when it's finished?" The blonde says, "According to the picture on the box...

Thank you Thanks for the suggestions everyone, We'll try all of them. I really appreciate the help. Jon

Hi all, My wifes breathing has gotten bad enough now that she can no longer blow her nose. We've tried a few things including Q-Tips, nothing has worked very well at all. We would appreciate any suggestions. Thank you Jon

Thanks to all Thank you to all who have posted answers and support. I am so glad that I found this very special forum. Everyone has made us feel that we truly aren't alone. Thanks to all. Jon

What I've noticed Hi CindyM, I'm sorry you're having problems. I'll do my best to tell you what I've noticed with my wife but keep in mind you haven't been diagnosed yet. So try not to worry. My wife has fasciculations above the waiste. I've noticed where these fasciculations are the worst...

Thank you Al and John1 Thank you for your fast replies and the information. My wifes speach and swallowing have been seriously affected. She had a peg tube placed Aug. 3rd because she was choking with almost every swallow. Again, Thank you. Jon

Hello, I've followed this forum for a while. Everyone on here is so helpful and honest. I've watched other ALS forums where thats not the case. Thank you for being here :-D . My wife was diagnosed April 14th this year with ALS. 1 year ago today, give or take a week, she was walking around...