Recent content by Jingles

Speech & driving When I went to be assessed at the ALS clinic the speech therapist wrote out a few business cards stating that I had difficulty with speech because of ALS but that I could hear, understand and to be a little patient. I have not had to use them yet but I now have lost the...

Wonderful news Congrats Al. What a wonderful secret to have. I am envious of anyone who is lucky enough to be close to their granchildren. Our little guy just turned 5 on April 21 st. They just moved to Montreal from California and we are on the west coast so don't get to see much of him...

Newly diagnosed Hey everyone, Thanks for all your support over these last weeks. I have just been told I have MND and will be referred to the ALS clinic in Vancouver May 30 for further testing. The neuro did not do EMG because he said it would be done on May 30th appt and did not want to put...

Rob, I just read your post and poem and balled my eyes out. What a great poem. I am sorry for your loss. I have just been diagnosed with MND. I am sure I have bulbar onset as well as your mother did. I am shocked that she went so quickly. How long did she have her symnptoms before her...

A new outlook :-D Thanks for all your good thoughts guys. I have been feeling really down and weepy about the possibilty of this curse. Still am awaiting testing and results. But I awoke yesterday and thought ... enough of this feeling sorry for myself. I am going to not think ahead but...

Symptoms Thanks Michael and Leah for sharing your experiences withg me. I do seem to have much the same symptoms. I have fallen 4 times this past week, no real injuries to speak of but it is very scary and unsettling. Had MRI base of brain and C-spine wed eve. now playing the waiting games...

Trouble speaking Hi Michael, I am a new member as well. I have not had a diagnosis yet but my symptoms are trouble speaking, swallowing and choking spells. See Previous post. I am really sorry to hear that you can no longer communicate by voice. Thank goodness for CP's . Do you mind me...

Hey, everyone. Thank you Barb for your kind toughts as well as Granny...it means a lot to know that you have been in our shoes and you have a sense of what Karen myself and otheres who are awaiting a diagnosis are fearing every day. Karen, I to have the problems with swallowing. For me its a...

I am hoping after I have the MRI and see him in follow up we can discuss EMG. He had mentioned a Hemanginoma, so I guess he is ruling that out. But my symptoms sure seem consistent with some form of motor neuron problem. I will hope for the best.

Thanks for your words of encourgement..it does help.

Hi, I have just found this site and am very impressed with all the compassion and insightful thoughfulness so many of you show. It is comforting to know there are others that are so willing to impart their knowledge. I am 51 and am having so many similiar symptoms so many of you have...