Recent content by Jimi

I'm completely paralyzed except some very slight head movement . I have had a trach since fall of 21. Feeding tube only. 100% vent dependent. Tried many things. Settled on manual digital extraction every four days. Not pleasant but you get used to it. The benefits are no accidents , very...

thanks. I spent about three years 24-7 on niv. Had a trach since September 21.

nothing natural with wearing a mask to breathe, but when it is a matter of survival you can adapt to almost everything

at first I had some anxiety but that quickly went away as I needed niv 24-7 to live

120/75 75bpm

I live in my recliner - Lift chair with my eyegaze pc and Android phone in front of me. In 2023 I left my room a total of 3 times, all for Dr appointments. Every 4 days I leave my recliner for a sponge bath and bm (digital extraction). My wife changes my trach every six weeks and my feeding...

everyone progresses at different rates. This is how it went for me. Dx was at age 46 Mar ‘13 : drop foot left side May ‘13 : 1st Neurologist appt. Left leg is slightly weak. He says pinched nerves. Lower back MRI shows nothing Dec ‘13 : revisit 1st Neurologist. He says it looks worse. Mild...

make sure your vitamin D levels are good. It is is very important for immune system and mental health. I almost never see the sun and supplement D. My blood tests confirm sufficient levels.

I only have a little head movement left, so maybe I'm not the best to comment. In my experience as I stopped using it, it would quickly go down. The more I fought and used my muscles the better

you may find that after a month or two of him getting used to it and finding the comfortable settings that you won't have to change it. After about a month at home, I had it dialed in. Haven't had to change anything in two years. The first month is rough getting your body used to it. But it gets...

sounds like a great setup. I use the Google home app to program any combination of moves with one click. I also assign a key word to the combination so the caregivers can easily move when needed. On the pc I can use the smartings app, the web or the screen mirror of my phone to control.

I thought about doing something like that but I wasn't sure how to keep the two programmable memory positions. just seemed easier to use the sonoff switches with Google home already incorporated and use the stock remote for the memory positions. Besides I'm just a machinist not a electrical...

good job!

I've had a trach for over two years. I got the feeding tube at the same time and was under for the procedure. The feeding tube was actually more painful . Definitely better work on how to communicate. Unless he has good use of arms and hands, someone will have to be around24-7. Trach care is not...

head tracking or eye gaze is the next step