Recent content by jhviv

don't know how much more I can take I come here and I read about how caregivers get such emotional support from their husbands and wives suffereing from ALS and it makes me cry. my partner has turned into a nightmare. He's always been a difficult person, someone who lived outside of...

Mike27, you asked about health covering the washlets. I'm in the US and have United Healtchare. I"m in the process of getting a Toto for my partner. It looks like UHC will cover a portion of it if it is prescribed by our doc, who is more than happy to do so. A higher percentage will be...

my partner was 39 when diagnosed. he's 41 now.

thanks, Liz. i've tried a support group, but maybe because his symptoms are advancing slowly it freaked me out more than anything. maybe its not the healthiest thing, but beyond planning for medical needs and healthcare proxies and the like, I don't want to think about and i don't want him to...

also, as this awful disease progresses, if you're the primary caregive, you want have time for an affair. moral dilemma averted. :twisted:

catarina, you tell my story and we share the same opinion. francois, never feel guilty. everyone on this board has had those "selfish" thoughts whether they admit it or not. and the choice whether to admit it or not is how to deal with it. me, I'm a 31 year old gay guy (today's my...

Hi Lisa, are you sure his not eligible for disability? my partner is an artist and sort of stayed off the grid for several years before his diagnosis, but we will be getting some money. it may not be much, but he should be entitled for something. your ALS association can help you navigate that.

you're right, Tbear. about remembering to be understanding of PALS emotions. mi partner is in awful denial. He was never exactly mr level-headed to begin with, but now its just a roller coaster between the most heart-rending, desperate sadness and intense anger. He seems to have decided...

i think onion was drunk. god knows I get angry, but that was crazy talk.

congratulations, Holly I got married to my partner (in Massachusettes) this summer, a year after his diagnosis. I'm 30 and he's 40, so we're still both relatively young. the one thing that I will say from my experience, is that he has to have someone to talk to other than you. I found a...

I'm in the same boat my partner is only 40. He was diagnosed a year and a half ago. He's lost a lot of his arm strength, but he seems to be progressing slowly comparatively. but like you're brother, he isn't dealing with what's happening to him. I was patient at first with that, but now he...