Recent content by Jhn481101996

  1. J

    That's very encouraging. Do you twitch somewhere 247? Or bodywide? Do you cramp or have aches...

    That's very encouraging. Do you twitch somewhere 247? Or bodywide? Do you cramp or have aches and pains?exercise intolerance etc
  2. J

    Update since previous thread was closed

    Sorry to bother you all again. Just wanted to reach out again since my previous thread was closed. But I have another question. I recently had a EMG/NCS performed. That's 2 about 9 ish months apart from each other and was normal. I have a question. The neurologist who performed my EMG said in 32...
  3. J

    How’d your appointment go?

    How’d your appointment go?
  4. J

    Please help. Extremely worried

    I’ll try my best. But everything that’s happening to me points away from MND?
  5. J

    Please help. Extremely worried

    I was already given an EMG. And it was normal and I’m going on 8 months. Sorry to bother you all.
  6. J

    Please help. Extremely worried

    Does anyone like Nikki or Laurie have any more advice or insight on what this is I’m facing?
  7. J

    Please help. Extremely worried

    Thank you for your help. I have a follow up with my neurologist on the 21st. They scheduled a second EMG for me on the 28th. I assume to stop my worries. I’ve noticed exercise really aggravates the fasciculations. And I’ll have random thumps all over. It started in May. So I’m on month 8 now in...
  8. J

    Please help. Extremely worried

    Laurie may I ask you 1 last question? Is it a bad sign that I twitch 24/7 especially in calf’s. I know benign twitch is extremely common in legs. But I’ll get random thumps all over. But it just troubles me because I’ve read some stories. But why didn’t they see fasciculations on my EMG? My...
  9. J

    Please help. Extremely worried

    Thank you for your quick reply. I guess I was concerned I was slow progressing since I’m so young. But my hope is that my twitching isn’t caused by denervation because my EMG was normal. Thank you. Sorry to bother you all. Anymore advice would be appreciated.
  10. J

    Please help. Extremely worried

    Laurie I wanted to ask you 1 last question. My calf’s twitch pretty much 24/7. Left way worse than right. My thighs also twitch. I also get random thumps all over. My neck and elbows have been newest places. I was tested for Lyme and a bunch of other things. My final question to you is how long...
  11. J

    Please help. Extremely worried

    So from your knowledge I’m sure you’ve seen a lot of people come and go. MND is not in my picture correct?
  12. J

    Please help. Extremely worried

    Laurie I read some things you talked about in other posts. I'm worried I did my EMG too early. I did it around 3-4 weeks after symptom onset. And I'm experiencing more upper body twitching here lately. My neurologist thought it was bfs or cfs at worse. Not really sure. I get hard thumping...
  13. J

    Matt thanks for your comment. I’ve seen two really good neurologist with no change in exam. Seen...

    Matt thanks for your comment. I’ve seen two really good neurologist with no change in exam. Seen them both at least two times 6-7 months apart from original examination and had no change in exam. Also was given an EMG and they didn’t see anything.
  14. J

    Please help. Extremely worried

    Thank you for your reply and kind words. I read the forums before posting and they both sounded exactly like me. Thank you for your help. My neurologist said he didn’t I had anything sinister happening because I had no progression in 7 months. I’m still worried I’m a special case. Thank you.
  15. J

    Please help. Extremely worried

    Does anyone else have any other advice?
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