Recent content by jethro

  1. J

    Clonus/subclonus, how often is it?

    i had left leg subclonus, as my neuro checked. no babinski or so. it was one year ago. maybe it would be on a right leg either, but right leg is far worse. right foot curled (toes), but i dont want to accept fact that i am disabled. that is completely other thing, but just to mention. that...
  2. J

    Do all pALS have fasciculations all th time?

    there are als, ALS, mnd etc, but your seems to be one of the most peculiar i have ever heard of.
  3. J

    Do all pALS have fasciculations all th time?

    how far can you walk? steps a day? do you have wheelchair/ cruches or so? think that for your respiratory status is cannabis as a vasodilatator/bronchodilatator responsible. for whole status which goes in a form of a "very slow progression" there is one plant you should thank to. what is your...
  4. J

    Do all pALS have fasciculations all th time?

    @kim couldnt get any info between a lines about your health status, so i am asking publically: how are you (atrophy/walk/speech etc...). you can send pm of you prefer.
  5. J

    Final battle against ALS

    been there, done that :) it works for me. i put thc together with cbd 1:1 (120mg thc + 120 mg cbd at 19:00, morning app 125mg cbd (other vendor) so thc is not sucha...hm...cruel. it is called reverse agonysm or something like that.thc in the morning - ough, very brave! i am considering...
  6. J

    Do all pALS have fasciculations all th time?

    fasciculations are consequences, not cause. cathy jordan has fasc. after 34 year of als. some pals dont have it at all... shit, it is really complex thing.
  7. J

    Do all pALS have fasciculations all th time?

    my foot, which is almost dead (dropped) started to fasciculate arround toes who are death. hardly notecable, but they are present. maybe it refers to "almost"dead and fasc. are red light that very soon it will not be almost, but dead.
  8. J

    Do all pALS have fasciculations all th time?

    do all pals have fasciculation all the period? fasc. are (as far as i know) the only visible element which remind us that als is still here. correct me if i am wrong.
  9. J

    Final battle against ALS

    @kim try try THCA!! it is not psychoactive, easy to make, cheaper etcetc. i have thc in syringe app 1,5 years stored. first when i try it, i put 1/2 rice grain size, i was knocked down, couch fasten for 2 days. maybe at that time was higher concentration so if it dropped, my 120mg was...
  10. J

    Final battle against ALS

    today i elevated my thc dosage to 120mg/day. new goal is on horizont. too low dosage (rick would say). too big dosage (everyone who didnt try rick's protocol would say). i'll keep group informed.
  11. J

    List of diseases to be rule out before diagnose

    Not sure about NOT SHOWING ALS PATTERN. ALS HAS NO SPECIFIC patterns, and only we can see from EMG is about velocity of impuls, nerving/inerving muscles, amplitudes etc., nothing ALS specific. remember there are diseases ALS-like vs cause-of-ALS, mimics vs cause. Hg poisoning is considered as a...
  12. J

    List of diseases to be rule out before diagnose

    is there any "manual", list of tasks needed to be checked, whatsoever which is used before diagnose with als? i.e. liquor analisys, heavy metal analisys, blood work, mri etc etc why am i asking this? my neuro didnt check borrelia and heavy metals, saying: "oh, no... unfortunatelly, it is obvious...
  13. J

    Final battle against ALS

    100mg THC/day goal is reached. Already used for a few days. To be continued :) Definitely this is not for a pALS in a late stage.
  14. J

    Severe declining of ALSFRS-R and FVC

    i saw at bedlack's presentation where he states that when alsfrs-r starts to decline, it doesnt stop. as i remember, that "point" was" app mid 25 alsfrs-r. of course, it is individually. alsfrs declines lineary, fvc functionally. does somehow FVC follows alsfrs-r? my fvc dropped app 10% and...
  15. J

    Calf muscle very tight

    @kim why did your neuro suggest you "at least 40mg"? how he knows what 40mg does, and what 30mg - doesnt?lucky girl! you know neuros who tell about cannabis everything in superlative. i dont know such a guys. 2 weeks ago i added thc (50+mg) to my daily dose of cbd. i tried CW but their tinctures...
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