Recent content by Jessica77

My Father, Jim Provost, age 60, lost his 6 month battle against Limb on-set ALS at 7:45 am 7/28/2008. I held is hand until he took his very last breath. My heart is too broken to write any more now. I will share more soon. Best, Jessica

My Father started showing ALS symptoms in November 2007 and was finally diagnosed on February 14, 2008 with limb on-set ALS. This past week, we were informed by my Dad's palliative Doctor that my Dad only has a few weeks left to live. My heart is broken into a million pieces. His ALS...

I just wanted to share some information with everyone. My Dad has been having issues with his toes curling and his physical therapist recommend he try wearing Stassburg socks at night. They have helped him tremendously! They have reduced the curling with his toes and his calves feel better...

Feeding tune Are the doctors concerned about performing surgey on a patient if breathing is an issue? My Dad mentioned them performing a lung function test before going ahead with the surgery. Thank you very much for your response. Jessica

My Father's Doctor has decided that he get a feeding tube. I am a little puzzled by this as my Dad has no issues with eating and swallowing. He has lost a great deal of weight in the last couple months and this has greatly concerned the Doctor's. Is it normal for feeding tubes to be used when...

Fever My Father started taking Rilutek in February and it made him very sick. He too ran a fever consistently, around 99. He also battled constant nausea and dry heaves. At first, we thought he had a stomach flu but after a week of being very sick, he was hospitalized. After spending a week...

Rilutek My Father has been in the hospital since Monday and so far, the Doctors are at a loss for his symptoms. His ALS Dr. is very worried becuase my Dad has lost a tremedous amount of weight over the last month. His constant nausea and vomiting have prevented him from eating. He has no...

I had a question regarding immune systems. It seems that since my Dad's ALS diagnoses, his immune system has gotten much weaker. He has been so sick for the past month with numerous head colds and Flu's. He is currently in the hospital because his stomach flu got so bad that he could not eat...

I am trying to take it one day at a time, but to be honest it is very hard. I try to keep the negative thoughts at bay, but there are days they just flood my head. I have been feeling very overwhelmed lately. I received a phone call from my Dad last Thursday (while at work in NY) informing me...

Thank you all for your kind words and support. I have contacted our local ALS Clinic and will be attending the next support group. I think this will help me and my Fiance deal with this a little better. This disease has devastated my Family but it has also brought us closer. We are sharing...

I am new here and was seeking some advice. My Father, whom is 59, was diagnosed with ALS February 2008. Looking back, he started having symptoms July, 2007. He is progressing very quickly and it is breaking my heart to watch. He has lost 25 pounds and walking is getting more and more...

Hi Heather, My Dad was diagnosed with ALS 2 months ago. This new was so devastating to my Dad and our whole family. Being Daddy's little girl, I can totally relate to how you are feeling. I am getting married 10/25/2008 and my heart is broken because he will not be able walk me down the...