Recent content by Jessica231369

Yes he's got a trilogy machine, which I guess is similar to a bipap, his respiratory therapist said a trilogy was better than a bipap machine for neuromuscular diseases. He uses it very often. Ironically, he says that smoking Marijuana helps him breath... I think this is because it helps him...

Thank you everyone for your suggestions. He has no muscle left on his body and his back is the only position that he finds comfortable. His bed he keeps the head inclined and his feet only slightly inclined. He says that every mattress has been to hard for him. I will have to figure out how to...

I've been trying to find my father a mattress or a mattress topper for him to remain comfortable. He's in a hospital bed, and hates the air mattress that hospice gave him. My mother got him a memory foam mattress which he liked for a while. Now, as he's getting further into his final stages...

What I was saying was that my uncle made a remark regarding my dad's trilogy machine. Saying that by using it soon enough he'll be having tubes down his throat.

Thank you all for responding. My father's decisions will be respected, but there is differences in informed decisions and making decisions based on assumptions. When I talk with my dad, I ask him questions about his feelings and reasons. Much of those decisions are based solely on his idea of...

I just wanted to share with you that your answer is very helpful. I know this isn't my question that I asked, but I was reading this thread because I was curious myself. My father had the same things in his living will. I've talked with him about all of these things, but the question about when...

Thank you for your words. Unfortunately my father believes he doesn't need a feeding tube right now and isn't sure that he will ever want one. He has a breathing machine that is better than a BIPAP. It's like a respirator, I just can't remember the name of it. He's got a respitory therapist that...

I am 38 years old, and my father is going to be 65 in 10 days. Two weeks ago he was diagnosed with ALS and given a year. I have watched my father decline for the last 4 or 5 years, and the last 2 years have been rough to watch. No doctor could find the reason for his weight loss, and we all...

This seems promising, but I feel saddened by this a bit as well. It will not be even close to coming onto the market or even doing human trials before my father passes. I hope that they are able to really find a cure for this either way though. Thank you for sharing.