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  • Hello everyone. I was diagnosed in June 2013. Since then it's been a bit of a roller-coaster. Then the original diagnosis was queried (great joy) and they thought it might be something else - ie: MG (MuSk), Neuromyotonia. Unfortunately, they have recently told me it is in fact ALS :( I've been keeping myself busy researching and have joined in the fight for early FDA approval of GM604. Hope and pray this drug becomes available to PALS soon
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