Recent content by JenniLee

thank you i have wondered the same thing; thank you for your hope. if you dont mind, how have you lived with it so long? every change sends me into a depression downward fearing its all over. what r ur physical restrictions? love, jen

hi everyone! been awile--so many changes. a year ago, xmas was festive, i was strong enough to nurse my mother back to health and hope and strength were plenty. since i have been diagnosed with als, lost voice, have hands that hardly work, had a peg put in for meds and hydration and, have...

Help is all around Dear Connie; What a great sister u are to get right on it --finding help. I'm 38 w/ ALS bulbar diagnosed 2/2007. Have 2 small girls; 6 & 7. My suggestion; contact the MDA and get registered w/ them--they can help in so many ways. Your sister's neuro should have referred...

My mother agrees... My mother believes my husband made me suscepible to something--she was shocked at ALS diagnosed. Anyway she believes his treatment of me caused thid. I'm sure that's a mother's grief, however, I also believe my ability to handle the emotional & mental stress may be a factor.

Me dental In July 2006 I had 3 upper LEFT side teeth extracted with tissue implants to prepare for dental implants. After my 4 day recovery, my speech was a bit slurred (thought it was from missing teeth). Oct. 2006 I noticed weakness in 3 of my LEFT fingers. Speech still slurred Nov...

I Understand Dear Don; U wrote the words that have been causing my heart to ache. I was diagnosed w/ ALS 2/2007. I have 2 kids and cared for them and cared for home with much hard, loving work. (I'm 38, they r 6 & 7) I got u beat, though...I could type 90 wpm; now, it's mostle with a...

My hands don't work well, speech just about gone & I walk like Frankenstein. My balance isn't so good, I have to be careful of swallowing certain foods and I have muscle weakness? Somedays, when the stress of family and spousal problems is too much, I ask God "why not take me now, please?" I...

Hi! Mama; I feel your worries and fears. As you know, I have 2 precious ones too.My diagnosed was very quick. In fact, I made the appt to see a neuro, not my AP. I thought my speech was from an inplant procedure I was in the middle of. And when I mentioned to my AP that my finger wouldn't...

Ruled out MG They said the tests they ran were ruling other things out. I did not have a spinal tap or muscle biopsy. Had, 24 hr urine, losts of blood, EMG, NC, & MRA. I guess I was "easy". I don't get how I was diagnosed so quickly & others take months & years?

Went to Columbia and was diagnosed w/ ALS. They did blood, EMG, Nerve Conduction and some deep cellular MRI. Dr. Gordon said minimal nerve damage & minimal progression. But my speech is almost gone, my hands are weak, my walking is unstable, foot drop, twitching, fatigue. How do I cope when...

Hi everyone! Sorry I left for a while; it's been so hard. My family, for some reason (something to do with my husband), have been keeping their distance from me...I've been struggling to regain my emotional strength because of it. All my life I've been there for all of them; nursed my father...

On Wednesday, 4/12/07, I will be going to Columbia University to see a specialist on a second opinion. My fear is 1) he will only look at tests I've had done and give a diagnosed., and 2) he won't consider other possibilities. Here is where I'm at now... slowed speech, left hand finger-tip...

Al, Thank You! Al, I read your follow-up post to mine on another thread; I sincerely thank you for respecting my opinion, as I do yours. Clearly you are a rock and a big-hearted person. I have accepted the clinical outcome of ALS, but, I'm sorry....I still believe in miracles! I continue to...

Point Taken Loud & Clear I'm not an idiot; I did not miss the point. Anyone who walks into a Neuro office to get tested for something knows already what is at stake. When a diagnosed is ALS, everyone knows what that means. My POINT, is why welcome everyone with the "there is NO CURE!"...

Meg, You're right, you have been going through this longer than me. I will agree to disagree with some of what you said. We're just different. You see, I have a 5 year-old little girl who is all light and love, I have a 6-year old little girl whom I adopted from my husband's oldest daughter...