Recent content by jennifer79

Well it has been a while since i have been on here. I think i needed some time to process. On January 31,2013 my sweet 56 Year old daddy was diagnosed with ALS and on November 27,2013 he lost his battle. I was so lucky to spend the last 6months of his life by his side everyday helping my mom...

Thanks for all the sweet comments. Yes dad's disease did go very fast, I can't tell you how many times me and my mom said we felt like we were on a roller coaster ride. I was lucky enough to take a leave of absence from work in july and I stayed with him and mom all day long. DEbs sis I felt...

Hi! I just wanted you to know that I am praying for your family! Your post hit home to me. I am also 34 and have kids that adore my dad. my dad was diagnosed with ALS in February and just passed away in November. I hope that you are able to spend quality time with him. Please message me...

Hi! My dad was diagnosed in February and passed away on Nov 27th. Thru his entire illness he was the most positive person, he always said it could be worse and that he was going to fight. During the last three weeks he started telling us how tired he was and at night he wouldn't sleep because he...

Hey Kim, I am so sorry to hear about your dad having to move. I am though glad to here that he is stable with his progression. It is just such a heart wrenching disease for us to watch our love ones go thru. Things aren't going so good we almost lost dad last Tuesday because of his breathing. He...

Kim My dad's FVC is 41%. He is on a non invasive breathing machine 24/7. I think you would be able to tell if she wasn't being truthful. If we have to take my dad's mask off for a second we have to warn him and he holds his breath. I could tell when his breathing started to get worse just...

I guess I am so worried because my dad decided against a trach and I just am worried that he is already getting towards the end. I know you aren't a doctor but I know that you research and are very knowledgeable about ALS. I also know that no 2 cases are the same. I just really felt like you...

Hi Nighthawk My name is Jennifer and I know that you have no clue who I am, but I love reading your responses because you are so blunt and honest. That is why I contacted you because I am the same way and I need that. My dad was diagnosed in February at mayo in Jacksonville it started in his...

I am so sorry to hear the news about your dad. I felt the same way when I heard the news, because my dad is my hero too. I have learned just to take it day by day and make him comfortable. The first thing we did was go to the Clinic me and my brothers go to every appointment with my mom and dad...

Well the respiratory therapist came today and we are getting the Hillrom vest.

Last night we tried to use the cough assist for my dad, but he could come off of his portable vent long enough to use it. Any suggestion

Thanks for all the ideas. His physician is at the mayo clinic in Jacksonville plus he has a neurologist in savannah. He is having to stay in his hospital bed for the past two weeks because his power wheelchair isn't ready hopefully it will be in this week, the messed it up twice . My dads...

My dad was diagnosed in February with ALS, it has gone quite fast. He is already bedbound with no movement but in his right arm. I was wondering if anyone had in tricks or gadgets that I could buy to help him change the channel on the remote, also what about with using a cell phone. I know this...

My dad was diagnosed in feburary he is only 57. I have two little boys 8 &11 who he sees everyday. There are books you can buy to explain to your kids. They actually have different age levels. We read them together and then they actually took them and read by themselves. I spoke with the Dr...

This forum is truly amazing. Everytime i need advice yall no exactly what to do to help. He does have a hoyer lift and my mom is trying that today. He was getting to the potty chair with help. I think he has to get out of the mindset that he can still use his legs so we have to introduce things...