Hello out there,
I read a few blogs and my heart goes out to each and everyone of you. So much, that I feel I shouldn't even ask for help and just count my blessings.
My Mom has ALS and has been living in a nursing home for 10 months. She has had a feeding tube for 2 1/2 years, can't speak, write, swallow or point to letters to spell anymore. I try to see 6 days a wk. She is completely cognative.
I guess I am just seeking any advice or words of wisdom from anyone who is experiencing the slow painful loss of someone to ALS. After 2 yrs of being the only one speaking I am out of words. I feel like an elephant is sitting on my chest before I walk in her room. What to talk about, how to be a light in her world, etc... She has great faith. I read to her everyday. I just leave frustrated at myself and sometimes her. Terrible, just terrible. I'm afraid of regrets.
Well, it's late. I will keep you all in my prayers.
I read a few blogs and my heart goes out to each and everyone of you. So much, that I feel I shouldn't even ask for help and just count my blessings.
My Mom has ALS and has been living in a nursing home for 10 months. She has had a feeding tube for 2 1/2 years, can't speak, write, swallow or point to letters to spell anymore. I try to see 6 days a wk. She is completely cognative.
I guess I am just seeking any advice or words of wisdom from anyone who is experiencing the slow painful loss of someone to ALS. After 2 yrs of being the only one speaking I am out of words. I feel like an elephant is sitting on my chest before I walk in her room. What to talk about, how to be a light in her world, etc... She has great faith. I read to her everyday. I just leave frustrated at myself and sometimes her. Terrible, just terrible. I'm afraid of regrets.
Well, it's late. I will keep you all in my prayers.