Recent content by JenD1214

I also feel the same way about medicine. After a few years of my mother having ALS the weight on my shoulders was just too much to bare and I started having panic attacks all the time. So my doctor wanted to put me on medicine. I told him that I refused to take any kind of medication that I...

Hey everyone! My mom is on her 6th year of having ALS. She can not walk, or use her arms really. Seh can talk a little, but It is hard to understand her. She used to be the GLUE that held chrismast togehter hosting a party for about 40 family members at her house. Now she can't do anything...

Hey kim, things have been a lot better lately with my mom. We think my step-dad has (with out us saying a word) noticed that we are keeping an extra close eye on him. He has been so nice lately. The holdiays are coming so fast and now I have off for 2 weeks because I am a teacher. So I will...

I like the idea of having a code word....i will def. set that up with her. We are going to continue to give him more breaks as much as possible. Thank you!

Hey everyone...thank you so much for your advice I have been taking it all into consideration and discussing it with my other family members. My brother and I came up witha plan that she could live with him and his wife and Ic ould also move in to help take care of her. My brother went over...

So my brothers and I are 30 and 27 years old. We are all moved out of the house and my step-dad is the main caregiver of my mom. Only this weekend my stepd-dad had to work and my brother and I were taking care of her. I was decorating the christmas tree and my brother was sitting with my mom...

Hey Jackie, I am 30 years old and am a part-time caretaker of my mother who has ALS. I would love to talk sometime with you. You can email me if you want.... Jen

I agree! It sucks so much, and sometimes after awhile, people stop wanting to hear about your pain, thats the problem I am having.

It sucks because my mom has had ALS for over 5 years. When she was first diagnosed my family and friends were always there and always willing to listen to me when I was upset. As the years went by, my mom hit a stable point, where she hasn't gotten any worse. I am happy for the fact that my...

So, after I posted my first thread I found out that there is an EYE GAZE machine that my mom can use to communicate again and then I also found out its covered under her insurance. I haven't seen my mom so happy in SO long. I told her she would be able to email and use the computer again which...

Thank you everyone for your advice so far. I am already starting to feel better just knowing that I can share my feelings on this site. I've been holding in a lot for a long time. My mom is on a bipap for a few hours a day. She is supposed to use it at nite, but as I a stated before, she...

I know how you feel as well, my mom makes it very hard having the disease because she refuses to use the new devices that we want her to use. One piece of advice that I have is that I called my local ALS association that my mom goies to and secretly let the social worker know that we needed a...

Hello everyone, I'm new to this, but I have been looking for a way to discuss how I feel with people that I know understand what its like to have a family member who is suffering from ALS. My mom has been fighting ALS for about 5 years now. She is at the point now where she has absolutely no...