Jeff Long

Thanks for adding us. We live not far from Crabtree Mall. My in-laws live in Greensboro. They are in Charlotte today seeing if they qualify for a study. It's truly a nasty wet day here in Raleigh! Yuck.

if you need to talk my cell number is 850-499-9371, just remind me it is Jeff.

HiJeff,
This will make you laugh. When I got my first EMG the tech told us she moonlights at a restaurant we frequent. Guess who our waitress was tonight? Yup, the torturer. Good waitress though, kept my coke filled,
Take care,
Susan

You are truely my hero!

I salute you Jeff, and thank God for your service to our country...you are paying a double price having ALS. Just want you to know I am praying for you and all vets with ALS today. God bless you!

I get anger, Jeff it is part of dealing with tough things.....but I never think that God has sent me ALS...God just allows stuff to happen, but He is always there for us as we go through tough things. I believe God will take all we suffer and turn it into our highest good spiritually. But we each have to go through the stages of accepting life's sorrows...and anger is one of those stages....accept your daughters anger, let her express it. God can take it ! love you

Hi Jeff! Thanks for dropping by...yes I am a Sister/Nun...no longer in my monastery but at a retirement center for active sisters. (teachers, nurses, etc.) I am contemplative nun, focus on prayer only. But I have to say i love where I am now. I have freedom to come and go as I please...to talk to other sisters. This is amazing cuz i am losing my speech and legs. But I stay in the present moment grateful for what I can still do. I think wisdom comes with age...I am 60 years old...living through the "stuff" of life can make you wise if you pay attention to your failures.....this disease is the biggest mountain I have ever climbed!

I feel your pain, after 24 years Army and a paratrooper, made my last jump 90 days before retirement, I sound like rice krispies getting up in the morning, and feel like shit for about the first 2 hours. This cant help when I progress to the state of immobilization. But what can we do. I just think that anything we can do to stay healthy cant hurt even though I agree it is like rearranging the deck chairs on the Titanic. Niceville is on the FL panhandle coast between Pensacola and Panama City. We are right across the bay from Destin. It is great here and we have enjoyed it.

Hello I hope things are going well in your world today. Just wanted to drop a line and say HI.

Welcome to the forum family Jeff....your humor made me smile...well, families once in a while really go at one another....but I think we have gotten through this one all in one piece. Really, I have found more friends than enemies here...it astounds me how close you can get to a cyber friend. That's why I put my dukes up and went at it...for my friend.

Thanks for the levity...I am very sorry for your diagnosis but none the less welcome to the family! It usually does not get that heated but heck I guess a little disagreement is healthy everyone once in a while!
So not lose weight, every time I go to the Dr, the nurses check my weight and do not want me losing they say often once you start losing weight it goes down hill quicker. There there is actually a study going on now to see if being mildly overwight extends your life span if you have ALS.

Stay strong and keep the faith my friend!

Welcome to the forum Jeff. The weight will come off without you trying or at least that's what I've discovered. My partner tells me that I now have my girlish figure back. I find that flattering, but also a little scary since I know that there will be more coming off and then I will look like a withered up old lady.

So enjoy the weight while you can.

We went to a buffet for dinner last night, and I loaded up on icecream and whipped cream! Yum Yum Yum... I didn't even feel guilty but I sure didn't sleep very well and made several trips to the bathroom! It was worth it though.

I suppose the genders are both sides of the same coin. Too cute! I hope you have a great FRIDAY Jeff! It's warming up to the upper 50s today so all the snow should pretty much melt.

LOL! I'm sure you're just more hugable is all. I know that's how my husband is. Mooore hugable! Funny story. My sister and I were talking in the early 80s after a bad relationship thankfully fell apart for me. She said "In my next life I want to come back as a man." I said "But Beth, men are pigs!" She replied "But they're happy pigs!" Way too funny! Still cracks me up. I hope you're doing well Jeff!
Hugs to you!
Marta

My hubby is about your weight and weighed about what you weighed when we met. I think it's normal when you're happily married and I assume you are. Don warryboudit!