Jeff Long
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  • Rest in peace Jeff. Praying for your friends and family during this difficult time. Thanks for your friendship and kindness on this forum. You will be missed. Kim
    Hi Jeff,
    How are you doing? My dad just turned 81 this past Friday. My family and I are going to make a quick visit to see him in Dallas over Columbus weekend. Our twins are senior in high school and they get so far behind if we pull them out of school. They have a four day weekend then so we are going. Dad is hanging in there but can't use his arms and legs hardly at all. They will still move but they are so weak. Take care, Kim
    Jeff - great article your daughter wrote for the ALS newsletter. You and Barb are looking good. Tom and I were hoping to go advocacy week but we had just been in DC the week before for a Kennedy Center show, maybe next year.
    Hi Jeff,
    Thinking of you! My dad is hanging in there but his limbs are getting more and more useless everyday. Luckily, he is still able to talk reasonably clear so the kids and I are able to call him often. He has one of those eye gaze things that he got thru the VA but he still isn't quite used to it yet. It takes alot of effort and energy for him to just press the one button to answer the phone. I'm planning on going to visit him soon for a week and the kids will be going out sometime this summer to visit as well. Take care, Kim
    Just checking in. I sent a couple messages back in mid September but hadn't heard back. Hope everything is ok and I look forward to hearing from you when you get time.

    Hugs,
    Allison
    Hi Jeff,
    I'm doing decent. Being separated isn't really something I love but I'm hanging in there. I'm really proud of my dad he has been a real tropper dealing with his ALS. He has his down days but doesn't stay down for long. He has a great attitude. The kids have a four day weekend next week due to a teacher's institute and Columbus day. So, their dad and I are going to drive and take them to see grandpa for a quick trip. Dad is supposed to get his van within the next week. Will see? Those things never come when they are supposed too. Take care, Kim
    I don't know Jeff. Something doesn't seem right about bmartinez on here. I would never give him my phone #, e-mail, or anything like that. I don't know why he won't just chat on here. Or, one of us could call him and he might so depressed that we couldn't help him by phone and he's thousands of miles away. He needs to get some counseling near him.
    I understand Jeff, can you text that number? or is there a way we can have a private chat session through this forum?
    Continued from prior message...

    Mom is hanging in there. Her cancer is spreading but she is still keeping her spirits up and staying busy. She has moved in with us and she is getting ready to list her house for sale in October. We have been busy helping her to get everything ready.

    Would love to come over for dinner :) You just give me some future dates and I will see what works best for all of us! How thoughtful of you.

    Take care and keep in touch.
    Hugs.
    Hi Jeff,

    So nice to hear you were thinking of Dad recently. He sure did love ECU and football in general!! I miss him dearly and it is still surreal for me some days to think that I will never be able to physically hug him or sit in his lap on this earth again. This has been hard on this Daddy's girl. I find comfort in knowing that I will spend eternity with him and look forward to that day I can be reunited with him.

    Sorry to hear that things are progressing for you, but so happy to hear that it appears to be on the slower side. I think of you all often and pray regularly for both of you. If I can ever do anything for you or Barb, please let me know. Even if it is just to give Barb a few hour break when she becomes a full-time caregiver for you. I know how hard full time caregiving is and how exhausting it is as well.
    Will continue this in another message.

    Allison
    Hi Jeff,

    I was just thinking of you and wanted to send you a note. Hope you and Barb are doing ok and holding up.

    Hugs,
    Allison
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