Recent content by Jeanieee

  1. J

    FDA Meeting webcast

    What time will the meeting be. Thanks
  2. J

    Introducing myself

    Hi bat boy. I too live in s. calif south of LA and go to mozaffar. I'm a couple of years into it with fairly relentless progression. Full time paid caregiver. Full time power wheelchair. Bipap nites only. Peg surgery two months ago went fine. But zapped about 15% of my strenghth And started a...
  3. J

    Hi filmmaker Enjoyed viewing your work! I'm a graphic designer. Had to quit working a few weeks...

    Hi filmmaker Enjoyed viewing your work! I'm a graphic designer. Had to quit working a few weeks ago. Too hard to sit at the computer. Kind of breaks my heart but then so does everything about this disease. I was diagnosed about a month ago. If you want to see my work, friend me on facebook...
  4. J

    Newly diagnosed. Hopelessness to acceptance?

    Thank you all for your kind and helpful responses. It's a daily struggle to worwith through my feelings and changing physical symptoms. I hope to put into practice many of your suggestions. Jeanieee
  5. J

    High spirits. Local contacts would be great. If your sister is up for it please have her contact...

    High spirits. Local contacts would be great. If your sister is up for it please have her contact me at [email protected]. I already have a full time caregiver. My son tries his best to oversee from afar but you know how that is. Thanks Jean
  6. J

    Hi Jo. Could you please email you article on marijuana to me. [email protected] Thanks Jean

    Hi Jo. Could you please email you article on marijuana to me. [email protected] Thanks Jean
  7. J

    Thanks for the instruction Lori. Can you view this? Xo Jean

    Thanks for the instruction Lori. Can you view this? Xo Jean
  8. J

    Thanks for the welcome, Anja. I look forward to getting to know you. Xo Jean

    Thanks for the welcome, Anja. I look forward to getting to know you. Xo Jean
  9. J

    Thanks for the welcome, Liz.. Xo Jean

    Thanks for the welcome, Liz.. Xo Jean
  10. J

    Thanks for the welcome! Xo Jean

    Thanks for the welcome! Xo Jean
  11. J

    Thanks for the welcome, Linda. Xo Jean

    Thanks for the welcome, Linda. Xo Jean
  12. J

    Thanks for the welcome and the suggestions. Jean xoxo

    Thanks for the welcome and the suggestions. Jean xoxo
  13. J

    Come for tea

    Thanks all for the welcomes. Helen, I would love to hear from your long beach friend. Have her private message me. Thanks! Looking forward to getting to know all of you!
  14. J

    Come for tea

    Hi everyone. I would like to join the 'tea party' I'm newly diagnosed ALS (3 wks) probably a year into it. I notice Daily Changes. :-( I live in long beach, ca. Alone except for caretaker. My son and his family live 60 miles away and do mostly long distance caregiving. While its ok for now...
  15. J

    Hi. It's me, jean. I spoke with you about mozaffar. He made the diagnosis. He was my fourth...

    Hi. It's me, jean. I spoke with you about mozaffar. He made the diagnosis. He was my fourth neuro in two years. alas, I think the diagnosis is correct.
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