Hi bat boy. I too live in s. calif south of LA and go to mozaffar. I'm a couple of years into it with fairly relentless progression. Full time paid caregiver. Full time power wheelchair. Bipap nites only. Peg surgery two months ago went fine. But zapped about 15% of my strenghth And started a...
Hi filmmaker
Enjoyed viewing your work! I'm a graphic designer. Had to quit working a few weeks ago. Too hard to sit at the computer. Kind of breaks my heart but then so does everything about this disease. I was diagnosed about a month ago. If you want to see my work, friend me on facebook...
Thank you all for your kind and helpful responses. It's a daily struggle to worwith through my feelings and changing physical symptoms. I hope to put into practice many of your suggestions.
Jeanieee
High spirits. Local contacts would be great. If your sister is up for it please have her contact me at [email protected]. I already have a full time caregiver. My son tries his best to oversee from afar but you know how that is. Thanks
Jean
Thanks all for the welcomes. Helen, I would love to hear from your long beach friend. Have her private message me.
Thanks!
Looking forward to getting to know all of you!
Hi everyone. I would like to join the 'tea party'
I'm newly diagnosed ALS (3 wks) probably a year into it. I notice Daily Changes. :-(
I live in long beach, ca. Alone except for caretaker. My son and his family live 60 miles away and do mostly long distance caregiving. While its ok for now...
Hi. It's me, jean. I spoke with you about mozaffar. He made the diagnosis. He was my fourth neuro in two years. alas, I think the diagnosis is correct.