Recent content by jbird

  1. J

    With thanks

    Dear bear2...My heart goes out to you and your family. I will keep you in my prayers to give you strength and hope. Take comfort in knowing you will get to see him again one day and that he is no longer ill. God Bless You! Praying for a cure, Jbird
  2. J

    One more angel!

    Thank you all for your support...It helps to know that there ar such caring people praying for my family. I will also keep you all in my prayers. God Bless You All! Praying for a cure, Jbird
  3. J

    ALS The pain it brings is hard to cope with somedays.

    I hope this does not sound rude but it is time to face reality. This disease will not go away by not talking about it. Please let your family and friends help you as much as they can. and please don't put things off because there is so much to get in order. I am talking from experience, so I...
  4. J

    One more angel!

    Last week on Dec. 18th, my husband, Jay, passed away peacefully at home. He was 46. He had only been diagnosed with ALS since Jul. 05. He had bulbar symptoms along w/frontal lobe dementia. He never once complained about the many changes his body was going through. He was the best and will be...
  5. J

    Do I or don't I?

    Shelly...I hope you have luck getting your mother not to drive, my husband was pulled over and because his speech is slurred and could not respond to the police fast enough, they arrested him for public intoxication. What a nightmare! Thankfully after showing paperwork, the charges were...
  6. J

    Have to say...

    You all are so great...thanks for listening and thanks for all the support. It is a great feeling. I appreciate all the kind words and the advide. I will take it to heart. I will vent ocassionally and keep you posted on my husbands progress. He is a wonderful man! I am thankful for you all...
  7. J

    Have to say...

    You all are so great...thanks for listening and thanks for all the support. It is a great feeling. I appreciate all the kind words and the advide. I will take it to heart. I will vent ocassionally and keep you posted on my husbands progress. He is a wonderful man! I am thankful for you all...
  8. J

    Have to say...

    I hope I don't hurt anyone's feelings...I am grateful that many of you are coping and getting around. This forum has lots of great ideas and information but... I have not found one person anywhere that is going through what I am. My husband diagnosed only in July '05 with ALS, bulbar symptoms...
  9. J

    excessive coughing

    Hi Al! Was a mispell before the med is cal ATROPINE - it is an anticholinergic. We heve to be careful with it because my husband has high blood pressure, so he only takes it at night. So far so good. He is sleeping through night, which in turn lets me sleep. (His coughing has decreased) I...
  10. J

    excessive coughing

    Thanks MLECOLE...I will ask about the cough assist. I sure don't want him getting pneumonia. He started taken Aponine yesterday, it actually helped some. There is hope! Praying for a cure, Jbird
  11. J

    excessive coughing

    Sorry it has taken me so long to get back with everyone...I have news from the dr. that my husband seems to progressing at an unusual fas pace. Doesn't sound good... Thanks for all the advice. He tried the anti depressants with no luck. I am going to check into the humdifier. I appreciate you...
  12. J

    excessive coughing

    Hello everyone... need some input. My husband seems to have progressed some more due to stress over the pass weekend with the scare of Hurricane Rita. In traffic for several hours. Anyways, he is coughing a lot. Lots of saliva. At night it seems to be worse. He has a wedge that he sleeps...
  13. J

    I Am Me

    Wow Trish! Wonderful poem...it brought tears to my eyes. Reminds me of my husband who is now trapped with this awful disease. Thanks! Praying for a cure Jbird
  14. J

    my husband the caregiver

    Dar from Ohio...Carol is right, he is scared not angry. He just hasn't found the right way to deal with all that he is going through too. As my husband progresses I see that I my fears are progressing and it is so helpful to have someone to talk to. I will keep you guys in my prayers...
  15. J

    Pray for ALS Day

    What a fantastic idea Trisha...count me in The power of prayer! praying for a cure, jbird
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