Recent content by Jayjmarc

Yes another EMG scheduled at UPMC Pittsburgh with Neuro next week. Had CK blood work yesterday. My Nuero who said I had Parkinson's has me seeing someone else. If you read my last thread you will know the craziness my life has been. Twitching has increased with weakness, lethargic, unmotivated...

My new EMG was pushed to today at 4pm. See what happens? On another note: has anyone ever experienced a feeling in bottom of feet like there is a mass of flesh, lump or something under the skin. My right foot feels like there is something there right where my toes start. Very strange feeling...

Sorry to hear Kenny. Hang in there man and know you are in my prayers. I have another EMG scheduled next week myself. Take care.

Thanks Spring, Ed, Ken and Hi. This is truly a great forum/message board that is out there. I appreciate the feedback and words of encouragement. It looks like I will be seeing another Neurologist at UPMC for another EMG. He wanted this done. This is a different hospital vs. the wizard that...

Notme: I have been searching on google and did see something like that too in regard to the muscle biopsy. I think it had something with seeing damage to the nerve endings. I am near cracking up. Today I have those flaciculations in my calfs. My legs feel very strange when I am walking. I am...

Ken: I am looking at Igenex to possibly get a lyme test. I have heard many of the labs do not test for it correctly? Good luck man.

Hello: I am concerned I may have ALS and your post in Kenwood's forum struck me since this is how I feel on a daily basis. I am dealing with a shabby Neuro Doc who doesn't think it is ALS. I wasnt to believe this and move on but am not sure since I feel like crap. I went out to lunch today and...

otta: Wow that sounds like me right now. What was the main thing that made the Docs say you had ALS (if you don't mind me askin)?

brooksea: Yes this was the ALS specialist at AGH in Pittsburgh, PA. Said with complete confidence that it would show up on the Muscle Biop. When we first arrived and took a call from his daughter about a sports event then even left the room to talk with her made me feel like I wanted to get up...

Oh yeah, he also said the muscle biopsy would show the ALS. I read elsewhere muscle bio is used to rule out other issues and is not used for ALS. At the end of the day I just want to know what the heck is wrong with me. The DAT showed no Parkinsons. If I didn't have that scan I would still have...

notme: I am confused too. He said he would do one in three months then he will see if it is worse. This is BS in my opinion. He said there is chronic damage, neuro changes, etc in my emg but from his physical examination he doesn't think I have an MND. When we first arrived his daughter called...

Saw the ALS specialist today. Said he didn't want to do another EMG. Said he thinks 99% do not have ALS. He said he would do a follow up EMG in three months. I have flacs, atrophy and weakness but am good for now? My wife and I thought about the Mayo Clinic vs. AGH here in Pittsburgh but we will...

10steps: I will still consider the Lyme but am really curious as to what the ALS specialist has to say. I did order a kit from Igenex and talked with my GP who said she would draw the blood and send it back. In the several years I have raced mountain bikes, hiked and lived in the Laural...

Sorry to hear about the EMG. Hang in there man. I have my fourth one next week and am not looking forward to it based on previous tests.

Kenwood: I hear you with the pain. I had back surgery a few years ago and thought everything was a pinched nerve. A recent MRI, however, showed no pinched nerves. I have been taking Motrin 800 like PEZ. They should make a dispenser like PEZ for Motrin. Oh well, I am getting tired and wacked...