Recent content by jayhawkwilliams

  1. J

    Could this be ALS/MND - possible family history?

    Just an update...I was seen by my neurologist this week and given a clean clinical, followed by a clean NCS/EMG (arm, leg, paraspinals, tongue). (the tongue portion was very noisy and I was very worried about the final outcome). I've been dx with BFS. Asked to return in 3 month for a follow up...
  2. J

    Could this be ALS/MND - possible family history?

    My cousin did have all of the testing and every other disease was ruled out. She did meet the EMG and exam criteria. I am wondering if you could recommend any clinical trials for me in regards to FALS? Should my father be submitting a genetic sample? My father was 70 when diagnosed; my cousin...
  3. J

    Could this be ALS/MND - possible family history?

    Sadly, she was diagnosed with "ALS by exclusion" mid-week last week. We are all totally devastated for her. I'm unsure of your reply to my question...does this ncs/emg and clean clinical mean Bulbar ALS is not possibly occurring for me right now or would I need to get another emg of facial or...
  4. J

    Could this be ALS/MND - possible family history?

    I was able to get an ncs/emg performed on the 25th. I am having a "pulling" feeling on the right side of my tongue and they didn't test any neck, tongue or facial muscles. Could I still have Bulbar ALS even with this clean ncs/emg?
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  9. J

    Could this be ALS/MND - possible family history?

    The neurologist did tell me if she was additionally diagnosed that she would ask me about genetic testing. I believe that my cousin will go ahead with the testing if diagnosed. My father was never tested as we believed his to be sporadic. I thank you for the speedy response. I forgot to mention...
  10. J

    Could this be ALS/MND - possible family history?

    This is my first time posting about some concerning symptoms I am having. I will state that my father was diagnosed with ALS in Jan of 2019 at age 70. We originally thought his diagnosis was sporadic. We now have another family member, my father's niece, aged 63, who will most likely be...
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