Recent content by Jay654

Update: Tuesday afternoon I had my EMG. I don't get the results until July but the doctor who performed it said "Well the good news is this isn't Motor Neuron Disease" . My right quadricep where I have atrophy which I have been having trouble with especially the most twitching, came up with a...

I really hope so Kim.

Hello again guys, Haven't posted for a while as I wanted to kind of ignore all symptoms and things that possibly pointed towards ALS/MND & give my mind a rest. Have now seen both Professors, they aren't finding any upper motor neuron signs but have noted the constant twitching mostly localised...

Hi Tracy Genuinely sorry to hear about your husband. It's bad enough for the sufferer to go through the disease but also the person that loves them the most to have to watch and feel helpless in the process. My heart goes out to you and all the strong CALS on here. We lost my Nan to the...

Hi Wendy, Thanks for reply again. I understand everything you are saying & agree with you on it just being a waiting game, he did say if anything developed he would see me sooner but nothing to the extent of a finger stopped working or muscle has died yet in my case but the muscle atrophy is...

This is the problem & this will cause debate, in my opinion he had already made his mind up before he even saw me, due to age, probability, he even wrote a family tree down for me to explain the unlikelihood of it being genetic but when did I ever say I thought it was? I know he's the expert and...

I am no medical professional but in my opinion; the weakness, the failure in the muscle to strengthen and grow even after constant use, the atrophy, the localised twitching, no pain. At one point I had like an aching to the bone in the left leg I was relieved because I knew pain was a good sign...

Slight update & question regarding advice. One of my best friends partner is a physiotherapist for stroke patients. She had a look at my arm (not my legs) that's been bothering me and noticed the twitching but also the atrophy in the right forearm and right tricep, to be truthful I had seen it...

Just read your thread. So sorry to hear that news dude, hope the second opinion offers something better. Jay

Hi Profej, Did you hear any news back? Have my fingers crossed for you buddy. Couldn't post on your thread but I read it all thoroughly. Jay

Hi Rice, I didn't notice much the same apart from the twitching to be quite honest with you. Jay

Ps: I also asked him if I could have my EMG test results printed out but he said he didn't have them.

Hello again. I understand most of you are busy & fighting ALS yourselves & understand that time is precious. So I don't intend to annoy or aggravate anyone with my question. Quite a simple question although there may be no definitive answer. Should I be more concerned of fast muscle twitching...

Update: today I saw the Professor at Oxford. After several basic tests and checking me over he said he didn't think it was MND but explained to me that he couldn't say for certain. He actually had a conflicting view on EMGs he said he didn't actually believe they were that great for diagnosis as...

Yeah its honestly no problem Fiona, I understand. I would PM you but I'm not able too. Just read your story, very interesting and like yourself I have also been an athlete my whole life training non stop 5 times a week (now can't) and also took L-Glutamine supplement which I immediately stopped...