Recent content by jaws

One might say the same thing about using a BiPAP, which is another FDA approved device used to improve respiratory function in PALS. But what they do with that, is adjust the data taking that into account. They would be doing the same thing with diaphragm pacer. Even, if I play devils advocate...

I've been on the Dexpramipexole study for about 4 months now. Based on my comparisons at PLM, I'm fairly certain that I'm on the placebo, but of course that's only a guess. Because my breathing is labored at night, I've been prescribed with a BiPAP. I'm also in contact with clinic in Cleveland...

Vertigo? That doesn't sound good. You be careful. I'm doing well; I had a few falls in October, but nothing serious beyond a busted lip. I've learned to slow down, and that's been helping. How are you? Hope you have a good Thanksgiving!!

hey, doing well. sorry i haven't checked in this forum for awhile. the storm passed us by entirely. had my second clinic, everything's good. still weak in my arms, but that's about it for now. knock on wood... how are you doing?

hey, doing well. sorry i haven't checked in this forum for awhile. had my second clinic, everything's good. still weak in my arms, but that's about it for now. knock on wood... how are you doing?

I just read about your landlord. That is illegal under the ADA -- you should seek legal advice immediately. And keep records of all contact, and any witnesses. Sorry about your troubles.

Dasher looks great; I think I'll use that, because I won't need to retrain myself after I lose my voice. I know there's retina tracking software out there too; I saw a demo by the university of Baltimore. Not sure if it's open source; I'll see if I can dabble and recruit some programming...

Hi, Marta, Sorry I haven't logged on in awhile. My computer was on the fritz the last couple of weeks, was using a loaner. Now my damn right hand won't type anymore; I'm having to use my left hand exclusively. How are you holding up? I start the dex study today, and am excited about that...

I love Harrisburg, although I'm a transplant from the South. How have you been? Aaron

Marta, I'm doing well, though progressively weaker in my arms; it's difficult to type any more. We're looking to buy a ranch house, rather than the old two-story on a steep hill we currently live in. I hope you're well! Aaron

Howdy, if you're still interested in fighting them, can you use the FOIA to request records?

This past week or so, my right wrist has become quite painful by the end of the day (and even starting out the past day or two) from typing. I'm a web developer, and the primary income earner in our family, so it's important I continue working for as long as possible. What I'm wondering is if...

w00t! I was planning on holding out for the robosuit, but don't that chair beat all!

Cancun? Nice! Have fun. Gwen & I are going to Tillman Island in Maryland at the end of the month. Our long deserved honeymoon. Yes, I go to the support group. Although everyone else is so much older, different issues they're dealing with.

Hi, there. I've been doing pretty well. Talked with my employer about my ALS, so I'm going semi-public now. We're looking for a ranch house, as our house is the opposite of accessible. How are you doing? Do you ever go to the support group in Hershey? Thanks, Aaron