Jason's Dream

Me too. I'm sending good thoughts your way. Not much help I know, but I am thinking of you and yours. Wishing God's strength and comfort for you all.
Marta

Becca, thinking of you, and praying for you and your beautiful family. Jason must be a wonderful man to have you for his wife. I wish there was some way to help you besides sending good thoughts and prayers your way.

Any time. I know you're going through a tremendous amount of stress. I wish I could help!

Me too Sweets. Thinking of you.

Becca just wanted you to know I am thinking about you and your family.

Just wondering if you were feeling better and how you were doing. I don't post a lot on here as you understand there is never much time as a CALS but I do think of you often and pray that God will help you through all of this. Hang in there and know that others commend you for what you are doing.

Becca I'm thinking about you and wanted you to know that. I looked at your album and loved the photos--especially the family feet one. Lots of love to you.
Laurel

I just read your story, and it sounds so much like my own. You guys seem to be about a year ahead of us. I have friends who say " i understand how you feel" and "Things will get better". I know they mean well.. But NO, they have no idea of what it's like, and NO things will only get worse. I'm glad I found this place, hate to have to be here, glad I stayed for the cookies. lol We should exhange emails.. for someone who really does understand what eachother faces.

No worries. I love the photos- beautiful. Saw your thread about how long. This question haunted me 4 so long but life is better resting in the love than worrying about an unknown future. Moms onset was noticeable in may 2009, dx Nov 2009. Since then speech gone completely, swallow weak; good day:about 4 tablespoons of soft smooth thickened food, all else done by peg incl hydration, non weight bearing, arms, torso cannot move. She can move a few fingers & has good control of side to side motion of head but not up and down. Uses bipap. I have no idea how long she has. I just know she's not wanting to die right now and I think that also plays a part. She knows she's loved and I guess Jason does too. I find this really hard and I only have mum to look after. I can't imagine how stressful it must be with little ones to care for too. I take my hat off to you and I pray you have many more meaningful moments with the love of your life. His body may have changed but Jason is in there!

Just read your post. So sorry to hear of Jason's diagnosis. This is such a roller coaster ride. I am so glad the equipment you need will be coming your way soon. Though it can be hard to see it come into the house, it makes such a lot of difference.

I am not surprised to hear you feel like you are losing yourself - how could you feel otherwise in the midst of all the caring you are doing not to mention all the emotions you are feeling. Hang in there. Receiving such a diagnosis it a traumatic event. But you are also right. There is living to do even if it is so different from the dreams you had.