Jannie_M

Jannie,

Let us know how you're doing, okay? I'm hoping the cancer has been located and that you're undergoing treatment. All the best to you.

Just popped in to say Hi, welcome and I am hoping you do not have this awful thing, but we are all here for you, to help you. Keep us posted on whats happening...((HUGS))

Got a letter in the mail the other day that the neurologist I was seeing at Hershey is leaving,
I wasn't really surprised by that. Still waiting, and hoping, and grateful for everyone here!

Jannie,

Good luck with your appointment at Hopkins. I hope it goes well for you, the neurologist is a good "fit" for you, and you have answers, GOOD answers in short order!

To be honest, my husband was not at all impressed with Dr Scott, thought he was arrogant and dismissive. I was son hopeful for a diagnosis, I didn't notice or care until he blew me off.
I go to Hopkins Sept 7th. Almost a year to the day of my last EMG (had the emg on my birthday last time) I PRAY that I get answers soon.
I will be glad to give you my number, although I don't talk on the phone much as my voice comes and goes. Do you want home or verizon cell? (I love unlimited "in")

I still think that Hershey should have put you in with Simmons, he is the top ALS guy and top neuro-muscular doc. Did you get your appt and Hopkins yet?

I will give you my number if you want to chat... Write back if you do..

She got her undergrad at Seton Hill. :0)

Nice to meet you too. We have Westmoreland County Community College, St. Vincent University, and Seton Hill University here!

I never met Dr Simmons. He was the doctor that the Neurologist here wanted me to see, but I already had a consult with Dr Scott scheduled, and since they were in the same department, there didn't seem to be much concern. I only had one EMG at Hershey, it was a month after my initial consult. I don't recall specifics about the results, but I am positive (based on my GP reading my chart from there) that my muscle twitching did not start until months after my EMG, and I never had a repeat one done.

Hi, Wow they did not get you in with Simmons after Dr. Scott did not know what was wrong. You should have been in with him when they could not figure out what was wrong.
I can say with pretty good certaintity that if they felt you had ALS, Simmons would have been put on the case. Not my first Neuo, although I was sure of what I had before that. I feel bad that you are not getting answers? EMG? results? Did they mention you seeing Simmons?

Jannie, I am reaching out to others in PA for information, support, and friendship! We live near Pittsburgh, PA. My husband has ALS!

I have been at this a long time. So did you see Dr. Simmons in Hershey? He did not help? I am sorry you are facing all of this.. Feel free to write..

Hello! I do not go to Hershey any longer. I went there in search of a diagnosis and was told "I don't know what is wrong with you so you will have to go see someone else"
I will be going to Johns Hopkins in September. I am still in the "trying to figure things out" phase, but if I need anything I will be sure to look you up! Thank-you :0)

Do you go to Hershey? can I be of any help