Recent content by Jamiet

u don't have ALS. YOu didn't name one symptom of it, as a matter of fact, you named things that point away from ALS. YOur doctor told you that becuase it's WAAAYYYY far from what you have going on and he did'nt want you searching the internet and ALS forums to see if you match it. The best...

Research Update from The ALS Association’s National Office December 9, 2008 ALS Association Co-Funds Study Showing Boosting the Body’s Detoxifying System Counteracts Nerve Cell Loss in ALS Mice; New Therapies Suggested In a study that demonstrates a much-anticipated proof of principle...

So sorry to hear of this so quicky. I have one suggestion, don't stop looking for answers, with two rocky mountain spotted fever test, there may be another answer. he wouldn't be the first to have something that resembled ALS that turned out to be treatable. I would see a doc that specalizes...

u need something to keep you off this board. Anxiety meds.. wellbutrin worked for me. Stay away from an ALS board....it will only make things worse! trust us. YOU 100% DON'T HAVE ALS Rgds, jamie

Maria, Hello, i'm Jamie. I feel inclined to comment, i've been around this forum for some time. I've pretty much been thru the ringer and back and like Wright and a few of the others here have seen many come and go (in a good way)... I certainly feel for you all, your hubby is young and has...

Pat.... Hey stranger...i'm so sorry this has happened..... I was reading this and will vote with Sharone's idea....what's the matter with all kinda cute young hunks picking you up.........only thing the hubby may get a little jealous...but what' swrong with making him appreciate you a little...

I hate this for you, i've been reading your post and feel for you. Get the referral! Go to a good center specalizing in ALS..! Good Luck Rgds, Jamie

I'm so sorry to hear this, it breaks my heart. I will tell you the one most positive thing your son has going for him and it's about the strongest ally you have at this point. Due to the sheer nature of his age, it's more than likely he does have a disease, but not ALS. What about Charcot...

Mindset is key Lou, I know how frustrated you are brother. I just have to tell you....i still got WHATEVER i had...it's somewhat plateaued, maybe a little worse off? My hands are stiff and hurt, my tongue twitches, my jaw pops at every breath and all the other crap that seems like ALS. I...

Jenny, i've been at sorta a plateau. I'm going to wait a while to see how hickey's plan is working overall, if it's temporary or long term. I have a job where i run the company and leaving for 6 weeks will be no simple task. the heavy metals thing would fit me perfect and probably that's what...

Wright, B/c i've done as much reasearch as anybody and to date, everything else has been ruled out, including ALS. I don't fret over it and if it never turns into that, good for me...but my gut feeling and based upon what is going on, I will be diagnosed down the road with a neuromuscular...

OMG April, you are so much down the same road i went. I'm still there, but April, my life is sooooo much better right now. I live with the twitches, cramps. Trust me, your mind is making you sooo sick right now. The anxiety and worry is making you literally ill. Trust me i was there...

Puzzled...i am exactly as you describe, same path, same issues, even the +hoffmans, thinning issues, speech issues and all kinda crap that sounds just like you. I even have the muscle biopsy, called "Essentially normal" (go look up essentially in the dictionary....it will scare you!), but it...

Suzan, How are you, sorry your going thru this. Answers from my opinion: 1) Varies, can be one pop to several. You cannot determine ALS twitches vs. benign, only difference is, ALS twitches don't stop, they go until the muscle is dead. 2) All over twitches vs. focal....nothing is concrete...

Jenny, PM me with what you wanted. thx jamie