Recent content by JamieL

I HATE reading those "organization" articles with all their tips and tricks. Really? Because you have 2 pieces of paper and 4 beautiful books and a $6,000 piece of artwork on your lovely desk/bookshelf combo? What about the 900 school forms (x2 kids) and the loooovely artwork said kids have...

Woah. I know this was from October but I just now saw it. I guess I missed something with the booting off of TxGirl? We were at the clinic in November. Not sure if you were there at the same time? We'd have been the loud obnoxious bunch. ;)

I get a call from my dad at least twice per week to unload on me all of those frustrations. Nothing he does is "right" in my mom's eyes. He is in a constant state of hiding things from her because she is on a mission to see if he's messing up the bills or the bank account or whatever. She is...

I'm glad you have a helpful and supportive husband. This disease is so awful and such a devastating blow. My mom is 71 and even though she isn't "young," it is still such a waste of life. Unfairly robbing a woman who worked her entire life to enjoy her golden years in her dream home that she...

Hi Kim- I'm glad you got your dad settled somewhere and that he seems to be holding his own. My mom pretty much watches westerns and cartoons all day. And reads magazines and whatnot. She seems to be content to just sit and exist. And my pops is making it difficult to "take him in stride."...

What I don't understand is the people who DO have a valid sticker when they are CLEARLY not handicapped. I mean where do they get them?! It isn't just an occasional thing. I see it ALL the time. I mean do they use a sick/elderly relative who doesn't actually drive and get a permit for that...

Tracy- I replied in your other thread as well. I wanted to add that our journey was a bit different in that we'd been seeking a diagnosis for about 9 months by the time we got to Dr. H. It was a LONG road, and it was actually a different neurologist here in Dallas that diagnosed her. He...

Tracy- My mom has ALS and they live about two hours away in Oklahoma (I'm in Dallas). We take her to the ALS clinic here. So far she's gone twice. Diagnosed in February, first appointment there in April, actual clinic in May, second clinic in August. You can go as much or as little as you...

I haven't been on lately either and just decided to check in today. Partly avoidance I guess. And guilt because I don't call my parents as much as I should because my dad is beating me down and driving me nuts, kind of mumbles and rambles on about stuff and I have no idea what he's talking...

My mom has always had boney cold little feet anyway. :) I shall try these out for her!

Thanks for the info. That is very helpful! Her surgery was in November and she's had her sugars tested several times. Always normal. It's so ironic and strange to take her to EVERY OTHER APPOINTMENT (cardiologist, GI, surgical follow-up, etc.) and here things like "perfect!" and "looks...

Yeah. Because THAT'S what she needs on top of ALS... drug reactions! Ugh. I'm glad it worked out! I'm not my mom's day to day caregiver (they live about an hour and a half away). I was there last weekend though. It's weird for me in a way. Almost like I've forgotten how she was before...

Well I'm glad your procedure was smooth and you are happy with the outcome so far. My mom is very much bulbar onset and I wanted her to understand that the simple removal of STRESS from the fear of choking would make her feel better. To have to dread each and every meal. To take small bites...

Yes, ALS is definitely 9 kinds of suck in an 8 suck sack. I have been on the forums since February (mom diagnosed 2/2013). I go a week or more at a time without logging in because it's great support, but also makes me sad. I feel like I need to jump in and be part of it and it makes me feel...

My mom has only been to one actual clinic visit since the first time we just met with the doctor. But he mentioned how lucky she is to have a great support system. Then at clinic every last person who came by- OT, PT, dietitian, respiratory therapist, etc. said what a good job we were all...