Recent content by JamesW

Hi Nikki, I wanted to update you on my situation following me having a consultation with an MND specialist yesterday. Firstly though what a difference a caring, compassionate and knowledgeable neuro makes - he took time to answer our questions and completed a very thorough examination. I got...

Hi Laurie, I see you are the boss of this forum so I had best behave �� I didn't even see a copy of the EMG and didn't think to ask at the time. I don't even know which bits of me are affected most except for that my bulbar region is clear. I think that when I get my next appt I...

I'm in Derbyshire which isn't too far from Sheffield - I will remember to ask at my next appt

Hello Nikki and thank you so much for taking the time to reply. Riluzole was mentioned and I will indeed take that when it is offered - good advice! It's funny as I saw my GP earlier today and he said something very similar to you in that things will have moved on medically by the time my...

Hi Kim Thank you for taking the time to reply - I really value your help. The Neuro that did my EMG was a locum as the hospital have a recruitment gap. I don't know if he was a specialist in ALS or not but I had to wait ages for the appt and even then it was a Saturday when they did it. What was...

Hi everyone, I am shaking whilst i type i'm afraid so apologies for my spelling and grammar in advance :cry: I received an initial diagnosis yesterday that i have MND and am being referred by by Neuro to a specialist with MND/ALS experience. I am male and 46 years old, my mother died of Bulbar...