Your symptoms sound so much like mine- it's super scary. Let me know what happens with you and I'll keep you updated on myself as well. Maybe that will help. I'm only 26 so It's obviously devastating.
Every symptom you have I have.
Except even my neck feels heavy. My CK was actually low- only 32
Every symptom you have I have.
Except even my neck feels heavy. My CK was actually low- only 32