Recent content by Jaloca

  1. J

    My Dad

    My precious Dad passed away at 9:40pm on June 2, 2012. 6 months to the day from his ALS/FTD diagnosis. His last visit to the ALS clinic was May 24 at which time they felt it was too soon to recommend him for palliative care. The day before he passed he was walking on his own and enjoyed not 1...
  2. J

    Clinic visit

    Tomorrow we have a clinic visit. Due to the FTD and subsequent denial of his condition, I was wondering what questions we need to ask. We have seen quite a decline since his last visit in Feb. Dad has difficulty lifting his head off his chest, his breathing is poor (it was 56% in Feb) and he is...
  3. J

    Swift decline?

    Thank you for your response. I made a call to the clinic on Friday and the OT will be coming out on Monday with collars. We are doubtful he will wear one however we have to try. He has admitted to his back being sore so we will have to see about pain meds which he is also unlikely to take. There...
  4. J

    Swift decline?

    My dad was given the dual ALS/FTD diagnosis in Nov 2011. He has had hunched shoulders for the last couple years prior to his diagnosis however over the last two days he can barely hold his head up. He is bent over and his chin touches his chest. Is it usual for muscles to decline virtually...
  5. J

    Second Opinion on ALS

    Sorry it took so long to reply. I think my post went to moderation before it appeared. FTD is Frontotemporal Dementia. The information we received from the ALS clinic is they now think that the FTD causes the ALS. The dementia affects reasoning and judgement moreso than memory, although we...
  6. J

    Second Opinion on ALS

    Hi Whistler. Our family is also new to this forum with my dad being diagnosed in December. I finally felt compelled to post after just gleaning the advice from the other posters because we are also from Abbotsford. We thought dad had early onset Alzheimer's but the geriatric specialist at ARHCC...
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