Recent content by jakela

  1. J

    Is my condition ALS with fasciculations

    Thanks to everyone for the support. Tomorrow is a big day as it is finally my neurology appointment. I have been noticing significant weakness on my left side, particularly in the morning now. My left hand is shakey holding objects in the morning. The fasiculations have calmed down with...
  2. J

    Is my condition ALS with fasciculations

    Vickim, Thanks again for the words of encouragement. One of my children's books is being illustrated. I was a CG artist for films like the Hobbit, so I have art talent, but my current symptoms make doing artwork very difficult. Creative control has been handed over to a talented artist, my...
  3. J

    Lotus, if you are in northville, you might want to try a Lyme literate doctor in the area. But...

    Lotus, if you are in northville, you might want to try a Lyme literate doctor in the area. But if you were Igenex negative then it might not go anywhere. Look up Dr. Keri B. Topouzian
  4. J

    Is my condition ALS with fasciculations

    As the days go on my left hand appears weaker each morning. And, when I am holding a an object such as a book, my left hand begins to shake after about 15 seconds. I also continue to notice the muscles above my left knee to atrophy. I spent the weekend with my family on the beach shores of...
  5. J

    Is my condition ALS with fasciculations

    I have actually written two children's books in the past. After reading this, I began to write another more complex book for older children. Spending time with my son is important to me. Today we are going to the playground with help. My left hand and left leg feel weak. This always brings...
  6. J

    Is my condition ALS with fasciculations

    Downton Abbey is a good show. I did watch that for a long time. Another thing that relaxes me is telling my three year old son stories. My job was creative so I can easily spin an hour long fairytale from my imagination. He sits in amazement as the world I am describing takes shape. Often...
  7. J

    Is my condition ALS with fasciculations

    I talked with the nurse from the ALS clinic yesterday. Fortunately, I have an appointment with a prominent ALS specialist in one month now. She said that ALS does not typically present with so much pain. I have severe pins and needles burning pain when I use my muscles at all. This is...
  8. J

    Is my condition ALS with fasciculations

    Vickim, Thank you for the positive support. Yes, I do need to relax. I am going to meditate and pray tonight. In that past, I used to exercise ambitiously or drink when I was too upset about life. I quit drinking to live a better life and now I do not like to exercise as it makes the pain...
  9. J

    Is my condition ALS with fasciculations

    I had a follow up neurology appointment. Despite my legs looking weak and having trouble holding objects (like a cup of coffee), the doctor said I do not have ALS. I am so confused because it is spreading all over my body progressively and it hurts, burns, and is making me very weak. I have...
  10. J

    Is my condition ALS with fasciculations

    Thank you Vicki! My life was really incredible. I was working in feature film on big Hollywood projects and very happy. Now I am stuck unemployed with these strange leg twitches and pain. I meditate regularly. Meditation helps for the anxiety a bit. I also pray. Other than that I am...
  11. J

    Is my condition ALS with fasciculations

    I had a sore lower back for many months and then it seemed to spread up to my shoulders. During this time, physical therapists noticed my muscles were twitching by my lower back. I had a trip and a fall and noticed that dancing and jumping was a difficult for me. I was thinking, "wow, I am...
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