Recent content by Jaded-1

  1. J

    low dose naltrexone

    Does anyone have ALS caused by autoimmune malfunction? (i have antibodies attacking anterior horn cells) Mine is caused by autoimmune and I wonder if this is worth investigating. Has anyone taken it that is autoimmune based als? interesting read I found too on internet... Autoimmune...
  2. J

    Methylcobalamin - research promising in slowing progression

    I have been taking the ubiquinol (coq10) and methyl b12. I have noticed my arm and upper body strength improving and my leg atrophy has slowed as well. The energy level increase alone is worth taking. I take 5-7 5000mcg losanges a day of methyl b12 and 2 100mg ubiquinol tabs 3-4 times a day...
  3. J

    Im worried i might have ALS

    ask your doctor to prescribe you something for anxiety and see if you feel this way in 2 weeks. .. or go into the emergency room
  4. J

    Nerves...

    I have had trouble breathing. At my last belt testing right before new years eve I could not catch my breath from jumping jacks. I am in good shape and had never had an issue like that before. I have always had very good cardio/breathing.. even during intense circuit training I would very seldom...
  5. J

    Nerves...

    my endocrin is a tough, very direct doctor. The only time she has seemed warm and compassionate was when she called me to let me know she spoke to my neuro over the weekend.... There point the EMG was conclusive with als and the clinical evaluation was consistent with 2 neuros. I finally read...
  6. J

    Skin test may predict Lou Gehrig's disease

    pretty interesting. I had thought I had vascular issues due to skin issues on my lower legs. My hair fell out along the path of the fasciulations as well. This sure beats being stuck with those darn emg needles.
  7. J

    Nerves...

    I am scheduled for my second opinion at the ALS clinic at the Univ of Chicago tomorrow.... Anyone have some encouraging words (especially anyone misdiagnosed after consult and emg from a MND neuro). I have already had my CK and full rheuma/endocrin workups. (2 different labs as well since I...
  8. J

    emg doubt

    Anxiety and depression can cause pain. Pain is nothing more than your brain telling you something hurts. Chronic pain can also be caused by neurotransmitter imbalances and the anxiety medicine they place you on can help that as well. The human brain is so fascinating. The pain feels real in...
  9. J

    Melanoma?

    Pretty interesting reads on the glutamine excitability/toxicity link to both melanomas and ALS. Riluzole is being investigated for a melanoma treatment http://news.rutgers.edu/medrel/news-releases/2008/04/early-clinical-trial-20080409
  10. J

    My storie with neuros

    stress and anxiety compounding a viral infection... Try an srri/srni and post after being on it for 30 days. You cant beat a biopsy of muscles as it would show signs of ALS. High CPK is normal after strenuous exercise.
  11. J

    Look out for this!

    talk about your family and humanize yourself. Bring a picture or two of your child/children/mom/etc. I read some study where the radiologist on mris would re-read mris with a picture of the patient or their child(ren). The result was significant more findings.
  12. J

    Emg

    I was diagnosed last week by a MND/AHD neuro (really 2 weeks ago, but I did not believe the neuro until my emg). I have been having autonomic dysfunction since December and have had rheuma and endocrin system issues ruled out. I am going to the ALS clinic in Chicago tomorrow for a second...
  13. J

    pain with als

    I have been just diagnosed, but heat works well for me too. I can feel the cramps "working themselves out" and then bam... back to super twitch guy. I assume the heat helps due to my physiology in movement is so screwed right now and I am putting pressure on joints to compensate for muscle...
  14. J

    emg doubt

    The neuro will emg based on your complaints and clinical exam. EMGs are very accurate. Why have you have several emgs? Have they all been clean?
  15. J

    Melanoma?

    I had some skin biopsies done the day after my emg. (I had the derma appt scheduled and I didnt want to cancel it as my endocrinologist sent me to her friend)... Well I didnt think anything of it and I received a call on Friday that my back mole came back as pre cancerous. (Clark Nevus/atypical...
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