Recent content by JackieZ

  1. JackieZ

    Dobhoff NG tube and Real Food Blends?

    Dobhoff was the last resort. Took four grueling tries to get it down (and a lot of tears since I'd been six days NPO, failure would have meant weeks or less to live). I do not want a trach and surgery would have likely ended with that. PEG could not be placed as my organs did not provide a...
  2. JackieZ

    Dobhoff NG tube and Real Food Blends?

    my CT scan ruled out peg as a viable option so they placed a dobhoff ng tube. The hospital provided Nutren was intolerable. I ordered katefarms and liquid hope to try instead. Has anybody tried Real Food Blends feedings SPECIFICALLY in a dobhoff? I assume there's probably broth dilution...
  3. JackieZ

    Electric Stimulation/VitalStim

    A PT wanted to put me on an eStim bike and my neurologist said ABSOLUTELY NOT. He said they believe it to speed up progression.
  4. JackieZ

    Caregiving tips and mobility questions

    re: bipap I use a phillips respironics Trilogy and, to be honest, I hate it. I feel like it shouldn't be taking me months to get used to it, but it has. I wear it during the day, which makes sleep a little better. I struggle wearing at night because if I need to cough, I am helpless in bed. I...
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