Recent content by JACKIEMAX

  1. J

    Caregiver frustration, anger, guilt...

    I Hope All The Caregivers Are Reading These Latest Posts. Not For Guilt Purposes, But To Help You Understand We Don't Always Know When Their Death Is Imminent. The Hospice Nurses Had Told Me How They Tho't It Probably Would Happen, So Up Till It Actually Happened I Was Watching For The Signs...
  2. J

    Caregiver frustration, anger, guilt...

    Comments To Newbie As Many Of You Know, My Beloved Husband, Horace, Lost His Three-year Battle With Als A Few Weeks Ago, Dec. 3rd. I Have Not Been Able To Bring Myself To Come To The Forum Since Then, But Something Drew Me To It Tonight. I Am Glad I Did. My Heart Went Out To The Caregivers...
  3. J

    husband in "final stages"

    horace lost his battle with als dec. 3, 2oo8 hello all. i guess by now most of you know that my beloved husband, horace, lost his battle with als on dec. 3rd. i was by his side, holding his hand when he drew his last breath. i had never seen anyone die before, and i cannot get that last 30...
  4. J

    Extended Family Problems

    Extended Family Horrors..... Hi Jimmercat And Others, As Some Of You Know, Horace Lost His Battle With Als Dec. 3, Just A Few Weeks Ago. He Suffered Sooooo Much At The End, And Was Begging God To Come Take Him Home. I Married Into His Family 8 Years Ago, And His Oldest Daughter And Sister...
  5. J

    Jeannie, I Am A Wife Of An Als Patient -3 Years Almost Now. I Have Learned To Scan Apicture Of...

    Jeannie, I Am A Wife Of An Als Patient -3 Years Almost Now. I Have Learned To Scan Apicture Of He And I By Name When I Post. I Noticedyour Are Good. Would You Help Me With Mine. Jaxiemax
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    ALS, BiPAP, Insurance and the PSG...

    My Views On Bipaps,ins. Etc. My Precious And Formerly Vivacious,healthy Husband Was Dx With Als 2 Years Beforet His Jan, Alho H Had Symptoms The Year Before That; We Just Could Not Find An Als Specialist For A Year To Dx Him. He Has Been On The Oxygen In His Nose To Sleep From The Beginning...
  7. J

    husband in "final stages"

    Als Support Group I Don't Know Anything About A Well Spouse Group, But I Just Read In Our Local Paper That A New Als Support Group Is Starting Up Here In Middle Tn. On The First Monday Of Every Month. I Was Thrilled To Read That, And Will Try And Get My Granddaughter To Come Sit With Horace So...
  8. J

    Hubby very sick

    My First Tho't When I Read About The Chiropractor Wanting To See Dave, Was 'oh My Gosh, Please Don't Do That'. Als Is Not Something That Can Be Cured Or Even Helped. It Is Incurable, And We All Know It. I'd Do Anything In The World To Bring My Husband Some Relief And Comfort, But Some Days It...
  9. J

    husband in "final stages"

    Thank Y Ou All For Your Thoughts And Replies. I Tell Myself A Hundred Times A Day That He Did Not Ask For This, And If It Were Me In That Bed, I'd Want To Just Go On To Heaven And Be Whole Again, And At Peace. We Don't Always Put Ourselves In Their Places Mentally, But We Probably Need To. I...
  10. J

    husband in "final stages"

    Leigh Ann, I, Too, Feel Guilty Every Day Now, And Have For Many Months Because I Am So Very Tired And There Are Many Many Days I Just Want This To Be Over For Us Both. My Husband Was Dx In Jan. 07, And Now It's Almost 3 Years He Has Hadel This Monster Disease. He Is Completely Bedridden...
  11. J

    Change in Rate of Progression

    I Am Always Amazed When I Read Some Of Thes Posts Bec. They Are A Mirror Of My Own Thoughts And Heart. I Hope I Can Remember The Things I Want To Share Here. By All Means, Have Your Husband Be A Part In Your Daily Decisions, Even If It Is Very Simple. They Are Still The Head Of The House...
  12. J

    Dad wants to go

    Debbie, Thank You For Asking About My Husband, Horace. He Is Not In The 'active' Stage Of Dying Either, Per Hospice Nurses, And The Discoloration They Are Talking About Will Show Up As Purple, Splothy Bottom Of The Feet, Then The Knees And Hands. This Is Just Right Before They Die I Am Told...
  13. J

    My demented year with ALS

    I Promise You Dear Friend That Many, Many Of Us Know Exactly What You Are Going Through. I Wish You Could Convince Your Husband To Use The Bipap As It Will Add Time To His Life. I Had Rushed My Husband To The Emergency Room Many Times In The Beginning After He Was Dx In Jan 07 As He Felt He...
  14. J

    Coping strategies

    I Have Read Your Posts About Your Sister, And Altho No Two Patients With Als Are Alike, My Husband Had Those Symptoms Your Sister Has Now Three Years Ago, And Altho He Is Bedfast Now, And Likely At The End, It Is Not From The Muscle Loss, But He Developed Respiratory Problems Way Too Soon. That...
  15. J

    Dad wants to go

    If Your Dad Is Indeed At The End, As I Feel My Husband Is At This Time, Then I Would Insist He Have Some Ativan And Roxinol Also, For Comfort. My Husband Gets Irritable Sometimes Only Bec. He Feels So Helpless, And Restless Bec. He Can't Get Comfortable. Even Tho This Is Not 'physical' Pain...
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