Recent content by Jac112276

Thank you for answering they ruled out ms and the pain I had is gone except in my shoulders where the muscle loss is I guess time will tell

I got blocked for emailing members I won’t due it again. I have muscle wasting in my right shoulder it’s all bone and I have two frozen shoulders I can’t brush my hair put on jackets sweaters tops wash my hair. I read an old thread where frozen shoulder happens in a pls variant. Could this be pls?

Hi some of you may remember me . I was diagnosed with early MS but there were not enough lesions in my brain to give me the diagnosis. I was diagnosed with fibromyalgia and small fiber neuropathy. I have an EMG scheduled November 12 because of my new symptoms. I can no longer open water bottles...

I also get the hiccups every time I eat or just out of the blue. I don’t know why

Some of you may remember me. I’m sorry for my prior posts I got frantic. I am still having twitching in my upper arms. It’s hard to use my arms and my right shoulder is bone it’s hard to sleep and use my arms. Does anyone know if an arm EMG reads the shoulder? Or just the arms. Thank you in...

Al, it looks like you are correct. The abnormal brain lesions seems to point to MS. I’m getting a spinal tap and more blood work. Thank you all for putting up with all of my messages. Your the most courages people I have ever come across. Im not looking for responses. Go’s bless you all. And...

I did not mean to offend anyone at all, apologizes. Your right I’m scared because I can’t control what’s happening. I just posted to vent I did not mean any harm. I didn’t think anyone would reply or pay attention. I’m angry because of what’s happening and didn’t know where to go to vent...

My classic ALS symptoms go on and on, my body is rotting and I’m so angry,,,,, so I’ll be back when I get official diagnosis so I can hopefully then get some support

Hi, so my vitamin B12 was 307, all other 11 viles of blood work fine. My right shoulder is now bone. I cannot use arms above elbows. Have to use heating pad around shoulders and back. My tongue besides being horrific looking is swollen it burns and is hard for me to talk. Shoulders lock, very...

If their is anyone that believes me, comments are welcomed but if it’s against the rules (which I believe it is) I understand completely. Thank you for reading

Things are not looking good. I can’t lift my arms up that high, the pain from my neck all the way down to my fingers on the right. It feels like lobsters are squeezing my muscles, I often use my left hand to hold my right arm up because it’s so heavy. The Atrophy on my right shoulder is worse...

Laurie, I’m so sorry that my post offended you. I have not been cleared of anything yet. My neurologist set me up with an appointment to see an ALS nueromuscler doctor due to my shoulder hand Atrophy and tongue appearance , I didn’t post about my ongoing symptoms, was just an innocent question...

I’ve been trying to search for (going through diagnosis) support group. I thought it would be healthy to join a formum for people with similar symptoms still in the diagnosis process like me. Does anyone have any idea if there is such a forum? I’m not able to find one, was wondering if anyone...

Making progress, called stony brook turns out they only have two als neurologists in the practice, they had a cancellation I got a Feb 5th appointment. Better then April. And I’m on the cancellation list to call if anything earlier. Seeing the ms specialist Jan 12, still have more tests...

Forgive me, I guess I just had to type it out and get it out, you’ve all kindly answered my questions. I just have to be patient