Recent content by Islander1019

  1. I

    Husband newly diagnosed

    Your point about fighting vs acceptance is a good one. I guess by fighting I really mean doing all he can to live his best life with ALS for as long as he can. I have no intention of pushing him to accept life prolonging measures he doesn’t want. I am desperate to know how to help him keep his...
  2. I

    Husband newly diagnosed

    Thank you all for your caring and thoughtful responses. I know that I cannot begin to imagine what is like to be the one actually diagnosed. It is so good to hear from the PALS here as well as the CALS.. I am working on my natural tendency to direct things and take my cues from him. I know he is...
  3. I

    Husband newly diagnosed

    It feels good just to hear from you all. Such a kind and supportive group you have here. Thank you.
  4. I

    Husband newly diagnosed

    Hello Everyone, we’re having a really rough day today so I decided it’s time for me to reach out. My husband got his first diagnosis 5/21/18 and a second opinion confirmed it 6/14. He started noticing weakness in his arms on one side just after Thanksgiving. It then progressed to the other...
Top