Recent content by irismarie

it seems that an underlying and inescable feeling of fear and anxiety is as much p²art of the disease as the hands a

darling how exciting; spring came stmping in here at a right speed; i hav bought climbing roses lto go round theoor hoping to lea

Thank you much love valerie

sending massivE LOVE AND GOOD WISHQES

how are you coping, dear cris. Knowing you, you will be coping like a star but dying inside. are you still working all hourse or are you able to make more time for home? think of you with admiration and much love

yep, i agree, never in synch with others re temperature and legs and feet icy icy

my power chaiir is my life . Dont forget without it you end up in bed all the time. No choice. They are a bit big, but driven after all by a tiny joystick. i loVE mine tho the house had to be changed about. I love being able to go shopping by myself - ok, other people have to pass me stuff from...

all the right answers already. OU r gifts, eve, used in a minimal way are still there to help others. I was a pianist and could play just about anything but i dont think anyone appreciate it half as much as the folk in my last carehome when i could bang out with one finger of one hand the old...

yep, a lovely sunny Spring and i am lucky as my room has a patio door straight out into the gardens so i am practically never indoors, just like in real life I have bought climbing roses to go over the wire opposite my door at the end of the garden and i have lovely purple and yellow violas and...

love love lvoe love love love love.so frustrated i cannot gather you all up in my arms

my beautiful beautiful lady, thank you for your message fill me in on your life and how things are rolling. i am too far out of the loop but i love you and yhours. How is your son making out? Loads of lo

I hate this disease with all my heart, cry and get depressed and miss my life like mad. But a weird thought has been worming its way into my heart and head lately - that we are experiencing an amazing though terrible happening. We are seeing/feeling our bodies, our lives, all our abilities being...

in the end i find it really does come down to reading and maybe TV. Thank heaven for those two things and my wheelchair - but yes life is boring and when you can no longer talk rather lonely. internet essential but even that becomes hard hard work love to you all

wot, no kindle???? much easier to hold and fantastic, amazing! hope the meeting goes well we took the doors and doorframes out to get into rooms. Would it not be worth it? eating and drinking is the same thing to me now, the texture the same. Thirst never ever satisfied. absolutley no appetite...

thank heaven!