Recent content by IgorZilio

I've been going to a PT for about 2 months, specialized in ALS and what he told me for cases like ours is that the most important thing regarding the treatment is to never, ever overexert the muscles. Strength exercises should be very well planned, of low intensity and long duration, with many...

Brandon, Progression is highly variable. Loss of function can happen overnight, over days, months or years. Speed up or plateau. Check the thread "Rate of disease progression" under "General Discussion About ALS/MND" to see some examples.

All the best to you as well. Be sure to get that stenosis checked out.

Cervical stenosis can cause numerous symptoms, including the tingling you describe. I would recommend seeing a doctor for further evaluation and a more comprehensive analysis of this - like which nerves are affected and the correlated symptomatology. In severe cases of compression, the symptoms...

EMG is very accurate. Fasciculations would've been recorded if they were present. My last EMG recorded fasciculations in ALL the analyzed muscles (cervical, thoracic, lumbar and bulbar regions, both sides), I don't feel them in 90% of those muscles, only in certain spots occasionally. So...

Vincent, I really really wanted CBD + THC, it seems to help a lot from what I've read. Any marijuana product here is actually illegal, however, you can import CBD from the US, but only those with neglectable amounts of THC. Still, the bureaucracy is insane. You need a very detailed medical...

I'll ask my doctor for a referral to a physical therapist. I've actually been meaning to ask him but always forget to. I moved so started seeing a new one, but my previous neuro wanted me to start respiratory physiotherapy as a precaution. PT + massage seems to be the way to go then. Could...

Nikki, Yes, I believe the cramp caused some sort of injury. I didn't have any of these problems prior to the cramps. It looks like I had a groin strain, but I was sitting on the couch watching TV. In healthy people, the effects of a cramp usually start going away in 1-2 days. It's been almost a...

By all accounts mine seems to be a slow/atypical form of ALS as well. Took 1 year to show some pathological EMG alterations, it doesn't seem to be as devastatingly fast as the 'normal' course of ALS. I just moved and my new neuro even said: "I'm supporting an ALS diagnosis because you fit the...

Hey everyone, A few days ago I had very bad cramps in my right leg, groin/thigh, to the point of screaming. It was out of the blue, I was just sitting. Yesterday almost the same thing in my left arm and hand. My pinky actually curled because of the cramp. Since then I'm with this horrible...

Yes, I feel that most documentaries on diseases out there lack subjectivity. Emotions are harder to represent and emotional scenes usually are crammed in there to have more of a melodramatic effect. Books are the perfect medium to express convoluted personal emotions going on in our brains...

Oh, I thought that Belgium thing was leading to assisted suicide. But from what I've seen he's mostly fine during the whole movie right? Hard to find a good depiction of ALS in movies, had some hopes for this one.

The subtitles. Just noticed that .srt is an invalid format for attachments here.

Hey, thank you! I found the movie here too: https://openload.co/f/ltufEQM7gXc/huw-935.mkv You can upload the subtitles I posted and they work very well! Just be careful if you have limited hand movements because there are some pop-ups on that website!