Recent content by I need answers

  1. I

    Progression Changes

    My husband has progressed very fast in the last 2 months.I hate this disease.
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    Hand weakness

    Best of luck
  3. I

    Bulbar ALS?

    My husband has bulbar , he had no tongue swelling nor a thick tongue. His speech was his only symptom.He had no pain whatever .Count your blessings .He can’t speak or eat anything by mouth .
  4. I

    Track wheelchair

    I appreciate you replying. I may take you up on your offer .My husband loves the outdoors ,and has a cabin in east Texas he enjoys going to .I just want him to have the freedom to do so .Thank you.
  5. I

    Track wheelchair

    Thank you so much .Lot of great info.
  6. I

    Track wheelchair

    Has anyone applied for a track wheelchair for outdoor activities. I’m thinking they have them through the VA independence fund .
  7. I

    Weakness

    He was told to take 2 in the morning ,1 in the afternoon and 2 at night .He can’t take anything by mouth , he use’s his feeding tube .
  8. I

    Weakness

    He was taking it because of biting the inside of his mouth .He has bulbar, and his mouth was always bleeding,No spasms anywhere else.
  9. I

    Van’s

    I’m really worried about the tight fit .Our kitchen door leads into the garage but the washer and dryer is on one side , and a storage closet on the other side of the door .
  10. I

    Van’s

    My husband was just fitted for a wheelchair last week.Did anyone have trouble fitting the adapted van in your garage ?We have a washer and dryer on one side of the door , and a closet on the other side .
  11. I

    Weakness

    Thank you all for replying .
  12. I

    Weakness

    He was taking 2 in the morning , one in the afternoon , 2 at night .Everything he takes is through a feeding tube.Thank you
  13. I

    Weakness

    His was taken for biting the inside of his mouth.
  14. I

    Weakness

    Yes , at the VA .They said it would help him from biting the inside of mouth .He mouth was bleeding daily .He was able to walk at the time . Now he is much weaker .
  15. I

    Weakness

    My husband has bulbar ALS .The DR has upped his dosage of Baclofen to 5 times a day.He is considerably weaker taking after taking them.Anyone else .Thank you .
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