Recent content by Hreal85

  1. H

    Dry cough

    Hi everyone, I’ve been trying to troubleshoot my dad’s cough for the last few months. Im trying to figure out if it’s related to his ALS or if it’s something else. He has had a dry cough for over 6 months now. He describes it as a tickle cough the kind that just by inhaling a certain way can...
  2. H

    Starting BiPaP

    Thank you everyone for sharing, I really appreciate it 💕
  3. H

    Starting BiPaP

    Hi My dad just had his check in appointment with his neurologist today. His fatigue has been much worse over the last month and so has his appetite and he has lost weight. He has been complaining about feeling short of breath during the night but fine during the day. He was diagnosed this past...
  4. H

    Diabetics and ALS

    My dad’s fatigue has gotten worse and I think part of that is he is losing weight. He also doesn’t have an appetite so I’ve added high calorie boost to see if that will help. I was also thinking about asking his doctor about a prescription drug to stimulate his appetite. Anyone have experience...
  5. H

    Diabetics and ALS

    Thank you!
  6. H

    Diabetics and ALS

    Hi My dad was diagnosed with ALS in January of this year. He has lost some weight (10 lbs) and we are trying to prevent him from losing more since we know it will speed his progression. He is able to eat food without issue. The problem is that he is a type 2 diabetic and has been for many years...
  7. H

    New MND

    Thank you! I’ll keep all that in mind.
  8. H

    New MND

    It was the first visit so maybe she didn’t want to overwhelm him. She mentioned clinical trials but in a broad sense. She wanted him on the Riluzole and to assess his liver function monthly for the next few months. She also started the process to see if he can get IV Radicava through his...
  9. H

    New MND

    Thank you for your responses. My dad is scheduled for a follow up EMG in 3 months but having read the doctors note with my dad’s permission, it’s says the “NCS/EMG showed widespread ongoing denervation and chronic reinnervation changes.” And MD Paganoni wrote in her note that the diagnosis is...
  10. H

    New MND

    Hi My dad who is 61 years old was diagnosed with MND today. He saw a neuro specialist at MGH in Boston after having two abnormal EMGs one in his right arm and the other in his left leg both done in the past month. He first noticed his symptoms last December 2019, he couldn’t pick up a quarter...
Back
Top