Recent content by hrdlyfound

Hi Debbie, your husband sounds like mine. Mine wants no feeding tube, no vent. Im scared for this. We arent in the situation of needing those things yet, but I know its down the road, because there is nothing good down the road....How is your husband. Can you tell me how it is when they dont...

well back from mayo with no new news. The neurologist there said it "POSSIBLY was als and we have to wait and see". mentioned something about emg being better than the first one done at ucsf, but im not sure we heard that right or not, he was smiling thru his whole speech to us. I wanted to...

well, on our way to mayo for some answers...hubby still the same after 8 months. had an emg done with spine surgeon which showed no als, however als specialist at ucsf does not take the emg into consideration as she says must be done by same emger to know for sure. hubby says hand feels...