Recent content by hr1982

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    Stim Pad?

    I was looking at another PMP site, and people there mentioned using a Stim Pad to help with swallowing. Does anyone have any experience with one of these? Does it help?
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    Lunch idea

    My mother (the one with PBP) has recently stopped being able to eat bread. She is determined not to have a feeding tube. We were walking through Wally World the other day when we came upon a man handing out samples. They were for a new product called Lunchables Jr., and they're being marketed...
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    Calcium pill problem solved

    My mother, who has PBP, used to have horrible problems swallowing the "horse pills" she was prescribed to keep up her calcium and Vitamin D. What's worse, she had to take one in the morning and one at night. Recently, I happened to notice a product (only in Wal-Mart here, as far as I know)...
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    Hot tips anyone

    Papaya Meat tenderizers are made with a substance from papaya; I imagine that whatever is used for that must help with saliva, too.
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    Mom "diagnosed" today

    Good to hear My mother has been saying she doesn't want a feeding tube. Today I asked the neurologist in her hearing what someone could look forward to who didn't get a feeding tube. He mentioned pneumonia and malnutrition, and I think she got the message. I've been trying to give her...
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    A first hello and a question

    oops Sorry about that. I thought the message hadn't gone:oops: I've fixed my profile, too.
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    A first hello and a question

    Arrgh Thanks for the information. Unfortunately, it looks as if it's only for Windows ...:cry:
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    A first hello and a question

    My mother (not I, as it says in my profile), who is almost 75, has recently been diagnosed with PBP. We first noticed that her speech was changing last summer. Here's my question: My mother has macular degeneration as well as PBP. This means that she can't see people's faces. She also...
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