In terms of the swallowing, I also see that commonly on the bfs forums-- myself included. However, mine is more to do with gerd and so forth. But, with ALS, the swallowing thing has more to do with liquids is my understand and not solids.
I don't know man, right now, I still think what you're...
If you can move them, that's good sign. It's not like they are in complete failure. What's odd to me is that you had the emg. I'd imagine that if your toes were due to ALS, the issue would have shown distally. I'd just have to think your toes are probably just stiff and so forth-- that's...
Thank you for the clarification, Janders. Sincerely. Either way, my heart, prayers, and well wishes are being directed towards your family-- and frankly everyone, for that matter.
Saw your newest post. Sorry that it's still going on for you, brother. When you say you can't move your toes, can you literally not move your toes or just not move them well? Personally, I'd stabilize the toe by holding the join and try to press down with the toe. Should give you a decent idea...
Thank you for the response. Yeah, unfortunately I have developed pain down my leg, cramping and stiffness, and random spasms. They went ahead and did another mri of my lower spine-- have a bulging disc and it was possibly torn at some point. Moreover, they put me on 300mg x3day gabapentin. If I...
"you are obsessing about a random remark." Point taken. Wasn't my intent. Not really an obsessive remark, was meant more to be like a possible memory refresher to someone else's story. Side note, I've been trying to do what you all do here insofar as, since I am currently DX'ed with cfs-- I've...
Wanted to update this post and also ask you about something you had mentioned previously.
I met with the specialist at the als clinic. Effectively, this person told me that they generally agreed with the cfs diagnosis, but that she wouldn't rule out als until a year had passed. Said that the...
When you say bouncing while walking, have you done a clonus test on yourself? Or, did the doctor check your for clonus? Check out a video on ankle clonus. It's easy enough to do; however, just recall that some clonus is normal.
Honestly, it's not a good idea to try and test yourself, if you...
Well, you just have to remember what this website entails. The people on here are saints for giving information and so forth, especially when they are going through it or have loved ones etc. It's a tough, terrible disease. I just pray to god you don't have it, I don't have it, and that a cure...
The reason why I ask is because with bfs and cfs, people, myself included often feel like our legs or feet are jelly. They aren’t it just feels like it. For example, I felt like my foot was dead-- then I checked it by single leg calf pressing 300lbs.
I noticed your post about the tripped and sliding the ground. Do you have clinical weakness in your foot? Actual foot drop? An easy way to test it is to keep your toes to you and press down on your foot. You should be able to resist it. Also, a motion like pressing the gas pedal-- should be able...
Keep me updated. I'd be happy to share the information I have. I'm not exactly out of the woods either. The neuro at the als clinic informed me that it takes a year to actually rule out als. The other neuro didn't say that to me. His opinion was that I don't have it, period. Unfortunately, I...