Recent content by hopealive

  1. hopealive

    mare, I read this birthday wish you sent to me now, almost two years later, and it is exactly...

    mare, I read this birthday wish you sent to me now, almost two years later, and it is exactly what I needed to see today! Missing mom terribly and your words brought such comfort. Thank You
  2. hopealive

    In Remembrance

    My sweet, kind, gorgeous and loving mother passed away one year ago February 28, 2009. I am in disbelief that it has already been one year. The year of firsts was difficult. I am so grateful and happy to say that I now imagine her healthy and well. People say this is what I would...
  3. hopealive

    Hi Cate, Well I am by no means an expert but, from what I understand ALS is never confined to...

    Hi Cate, Well I am by no means an expert but, from what I understand ALS is never confined to one area. It may not progress quickly but, always does progress in time. My mother had only bulbar symptoms for about 2 years before it then moved on to her arms etc. I hope this helps some. I am...
  4. hopealive

    Thanks for the sweet birthday wishes. I am trying to remember all of the great birthdays I...

    Thanks for the sweet birthday wishes. I am trying to remember all of the great birthdays I shared with my mom. Love, Holly
  5. hopealive

    How lucky I am!

    Congrats Iris Marie, I love your joy about this situation. Joyful under all circumstances, honorable. Love, Holly
  6. hopealive

    My gorgeous Mum

    I am so very sorry for the loss of your mum. Be gentle with yourself in the coming months. In my prayers, Holly
  7. hopealive

    When for hospice

    Hello Daughters, I just wanted to say that if your mom's seem to be showing the slightest bit of struggle in their breathing, please call in hospice. I feel that we waited a bit too long for this with my sweet momma. She was having what she felt were " panic attacks" which really were " air...
  8. hopealive

    While on my way to support group

    So sorry to hear of the loss of your mom. Mothers are so special and are greatly missed. Love, Holly
  9. hopealive

    2,5 years twitching..now excess saliva

    You guys have such a great sense of humor! My mom used to cut off a patch of a wash cloth and kind of hide it down in her lower lip like she was chewing tobacco, it cracked us all up, but it worked. Love, Holly
  10. hopealive

    breathing

    Hi there. For my mother regarding that awful mucous feeling, we used to have her kind of sip/hold coca-cola in her mouth, it would cut through that mucous and then we would suction it out. She felt it to be a life saver, also for someone who no longer ate by mouth, she enjoyed the taste. She...
  11. hopealive

    Hate-filled rant

    I hate that the memories I have of my mom are full of ALS. She was a strong, vibrant, caring and funny woman. ALS has no place in my memories of her.
  12. hopealive

    Walk to Defeat ALS this Sunday!

    Hello All! Wish us luck this is our first year doing the walk without Mom. Our fundraising isn't as high now that she has passed. It is going to be a tough day for me. I could use all of the prayers that you all can muster. It does feel good to be out there "doing " something to support...
  13. hopealive

    Dad is free

    Peace be with you! You are loved.
  14. hopealive

    Robin Hood

    You guys are cracking me up. It is true, only........ great people get ALS. Love, Holly
  15. hopealive

    Mixed Signals

    Mathew, I have one piece of advice, please go straight to the hospital administrator with your concerns. I spent a week in the hospital with my mother a few years back. It was awful, no one was giving us straight answers, no one knew a think about ALS, it was dreadful. I visited the hospital...
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