Recent content by Hope4Me

I am so very sorry for your loss. I havent been on the forum for awhile and just saw your post. Please accept my deepest condolences. Sincerely, Rhonda

We dont have for me yet either. And in fact it scares me more and more every day. My caretaker is my 82 year old mother who has some degree of demintia. I often say we're like the blind leading the blind! I worry about her since I see her aging and forgetting things which unfortuately causes us...

Same thing for me. In fact after having a couple good month with energy, this week stinks. Allergies hit me Sunday and though I feel better with the allergies, its all I can do yesterday and today to go to the bathroom. These times always scare me that this is it - I may be bed locked going...

Hi, I've been taking Neudexta now since early April and have not noticed my muscles locking up. I hope you can hang in there if it starts to help with your emotional state. I think it has helped me with the constant crying. Good luck Dkcarl!

Hi Al, Recently I had a presentation at the U of A Speech clinic on the SGD for thr Tobi Dynovox and the Accent 1400. I can still speak but its getting more difficult to do so and to understand me. I need to make a decision between these two units in the next couple days. I did well with...

Hi AZWXMAN, I also live in Tucson and found the wheelchair van companies here a little expensive. I tried to look for a private party van but miss one every time one came up or did feel good about the shape of the van. So, in my research I found Scottsdale Motor Company up in Scottsdale and was...

Have you tried pickle juice? I have aso tried the pinapple juice but I gravitate to the pickle juice and I'm trying to drink more water. We just buy the Kosher dill and use the juice. This came from my doctor.:)

Thanks. The sleep study is just a simple one where they measure my oxygen level via a finger device. At this point, I don't qualify for bipap the way they measure it at clinic. My doctor wanted to check another avenue.

Hi AZgirl, Thanks for your reply. I am also looking at the Medicare Advantage plans. Does your plan also have good drug coverage? I take Nuedexta and just found out its $840 now that my work insurance has run out. I believe its helped me and hate to give it up. Also would mind telling me...

Thanks and sorry you are stuck with it and in a state like me that doesnt allow a medigap policy until 65. It seems weird, what skin is it off the states nose? Maybe I'm missing the issue....

Thanks Mike _ we wil try that! :)

Thanks very much ILGB. I am looking now at the Medicare Advantage plan since AZ will not allow anyone under 65 to buy a supplemental plan. I'm glad that you opinon iis Advantage may be better. I am contacting insurance brokers now to see what plan I can afford. I'm in the space where I am not...

Thanks for your replies. Wow, I'm trying not to be overwhelmed here but 24 hour care is a daunting realization. It is taking me weeks just to get a doctor ordered speech therapist and a sleep study, 5 weeks to get PT in to the home and more I will not complain about. To know I will need...

Thanks Nikki, We have calls into SHIP and hoping they will call back soon. I really appreciate the link - we dont have that yet. Many thanks :)

After recently moving to AZ and selling my home, I am trying to determine what is best for my permanent residence, move into home or assisted living. I am currently at my brothers home until my mother and we find the best place to go. I know in the future I will need more intensive care and...