Recent content by Hope1935

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    Needing answers.. Confirmed diagnosis of ALS

    Hi all, I have been posting in the "Do I have ALS" portion. Our doctor diagnosed my grandmother yesterday. She has been saying for a few months that she had ALS (it wasn't that she wanted it to be ALS... Just just kept saying you know when something is wrong with your body and that she could...
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    Waiting/dreading Dr. DX.... What can I do as a caregiver?

    Re: Waiting/dreading Dr. ALS diagnosis.... What can I do as a caregiver? Thank you so much for your help. She did not think thre was lifts for SUVs. Her mother had a stroke when my grandma was 19 and she watched her lay there for 8 years.... This is a BIG concern to her. She also has a cousin...
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    Waiting/dreading Dr. DX.... What can I do as a caregiver?

    Talked to her a bit ago and her mood seemed up some! She has been wanting to trade off her SUV for awhile now... Would y'all recommend getting a van first or trading for something and then getting the van later? She doesn't want a van right now but at the same time she wants to be sensible. Any...
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    Waiting/dreading Dr. DX.... What can I do as a caregiver?

    Sad to say that the doctor gave us the final diagnosis of ALS today after the repeat EMG. Sent us home with some books and to write down questions. My grandma is very down over it. Wish there was something I could say or do... But as much as I've held back the tears and played the positive we...
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    Almost a year ago I have tried to get some answers on my grandmas condition. We are awaiting the...

    Almost a year ago I have tried to get some answers on my grandmas condition. We are awaiting the dx but the doctor said after evaluating all of her previous tests, blood work, and scans he believes we are dealing with ALS. She has been very depressed over it which I know it completely normal but...
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    We are in western Oklahoma but are seeing a doctor at the MDA clinic in Southwest Integris. It...

    We are in western Oklahoma but are seeing a doctor at the MDA clinic in Southwest Integris. It has been a very rough road so far, my grandma has always been extremely active and it has hit her hard. I have always been a "grandmas girl" and after my mom passed away suddenly from a heart attach alm
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    I wrote on a previous thread you commented on. I am from OK as well and wanted to ask if you...

    I wrote on a previous thread you commented on. I am from OK as well and wanted to ask if you used doctors in state or out? I'm very sorry for the loss of your mother. My grandma is in the process of being DX'ed. Thanks for any help you cab give.
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    tell me about tongues ...

    Asantiago, I saw your state of residence on here and I am also from Oklahoma. I am sorry for the loss of your mom. My grandma is in the process of being DX with ALS... Doing the final EMG tomorrow. I was just wondering if you used doctors instate for your mom or out. I don't know how/if you can...
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    Waiting/dreading Dr. DX.... What can I do as a caregiver?

    We met with the ASL doctor today and after he looked over all of my grandmas previous tests he was upfront and honest with us and says that he believes it is ALS we will have a repeat EMG tomorrow. He also said that although her weakness in the arms and legs was real he thought it was caused by...
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    Nek Brace

    Hello, I mentioned someone recommending using a neck brace to my grandmother and she thought that may help her hold her head up. Does it need to be one made specifically for her or what do we need to look for. Also I have seen several posts talking about twitching and although my grandma hasn't...
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    Need opinions on possible ALS diagnosed

    Re: Need opinions on possible ALS ALS diagnosis I called the contact number that a member previously posted and the ALS clinic is seeing her next week! They seemed like they would be much more helpful, also told me that the doctor wasn't a board certified neuromuscular specialist... Which we...
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    Need opinions on possible ALS diagnosed

    Re: Need opinions on possible ALS ALS diagnosis Thank you for your help. The doctor has not gone over ANY test results with us... It's like he runs them and we never hear about them again... At first I took that as "no news is good news", but now I'm very frustrated. I want to be told what is...
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    Need opinions on possible ALS diagnosed

    Also on the report what should we look at specifically.
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    Need opinions on possible ALS diagnosed

    Re: Need opinions on possible ALS ALS diagnosis I received her medical records when discussing the EMG the doctor says "performed outpatient and is consistent with mild axonal neuropathy. She has drop of CMAP and SNAP amplitudes. There are no myopathic or neuropathic changes by needle study."...
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    Need opinions on possible ALS diagnosed

    Re: Need opinions on possible ALS ALS diagnosis Thank you so much for the information. Do we need to stay seeing this doctor to get a diagnosed before we contact the ALS center? Or contact the center now?
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