Recent content by holly

Re: stem cell Hi I haven't visited for a while, my husband has ALS, he was diagnosed 5 years ago, he has a combination of bulbar and upper body progression. He is holding on...... At any rate, he took part in a study a few years ago that wasn't just in Toronto, it was right here in...

Hi, les has never slept well and with the advance of the als it was much worse. not much pain (leg cramps), but mental activity and twitching all night long. he was given sleeping pills to take (ativan) and he used to take one occasionally when it all got too much for him.....but he doesn't...

Hey kim, les and i are just going to sit down to do our will. we always mean to but, since He's been sick i'ts more necessary to do it, but also so much more morbid - you know what i mean? at any rate, tHe respirologist didn't give us tHe best news in tHe world. les won't be working much...

Hi karen, congrats on your move. i Hope it all works out well for you two (and tHe cat). moving in togetHer is sucH an adventure, it gives you sometHing to keep your mind off your troubles and at tHe same time let's you explore eacH otHers' personality (it's amazing How mucH you learn about...

Hey carol we're very happy to Hear tHe Henry got to come home. tHe two of you are in our thoughts and prayers. holly n les

Wow kim i didn't know your history. that's quite a plateful you have. les' mother just called me and i ended up speaking to her for a long time. i try not to tell her too much, but at the same time she has a right to know. to quickly answer your question, les was diagnosed 3 yrs and 5...

Carol we're so happy to hear something positive! les is resting now, but i will tell him that henry is doing better. we will be thinking of you.....you rest as much as you can....continue to stay strong. holly and les

Hi stanly my Husband les went tHrougH a pHase 1 toxicity study for stem cell treatment tHis summer. tHe study was performed to see if anytHing bad would Happen if tHey did it (notHing bad Happened). pHase 2 Hasn't begun, and i don't know tHat it will. we asked tHe doctor today if tHere was...

Hi, les and i aren't from ontario so i don't know what icbo is. there is a walk, roll, wheel for als 5km thing happening here. we got a form in the mail so i'll do it. there is a pledge form to get people signed up for if you do it, so i'll make the rounds at work and through relatives...

Tbear, i read your comment about jumping out of planes. les and i did that a few years ago. it was at thanksgiving. i'm giving thanks that we made it okay. i thought i would like skydiving, but it's not the feeling i wanted. once the chute opens it doesn't seem like you're a bird...

Hey timsHelper (kim?) yup, tHere are a few of us out Here in bc. my husband is les hart and i'm holly hart. les has als. you can sure get a good feeling tapping into this forum. i know you guys will be tHere wHen/if i need it. holly

Who fixes these things? Hi, i tried to get on the site yesterday to see how carol and henry were doing and i got redirected to the www.turkwarrior.org site. apparently the forum site was hacked? i sent an email to the web designer to ask them to fix it (i really didn't know who to contact)...

Tbear i don't want to mislead you......les can't drink anymore and though i'd like to take up the slack, i worry that if i have more than two i'll not be alert enough to look after les. so i stick to about two, but boy do i make them count. holly

Hi all! i've been reading tHrougH tHe emails. i knew my Husband read tHe messages but i didn't know He was sucH a prolific writer. les is my Husband, i'm Holly. we live in surrey, b.c. between us we Have 3 kids (2 boys, mine from a previous marriage - age 21 and 19; and a girl, His from a...

Welcome angela i'm new to the forum too. not so new to living with a spouse with als. i've found (when i do have time to sit down and read the forums) a wealth of information, oodles of empathy and a fabulous sounding board. keep the lines of communication open to them. it's sooo hard to...