Recent content by hjlindley

Still here! The SPC has given me freedom and we are going out Saturday night, if it doesn't rain will. The Permobile representative will and the distributors technology guy came to the house yesterday and are going to get me a softer back, gel armrests will and gel feet pads. My dictation...

still here

I take amytriptolin, which helps me sleep, dries out my mouth so I don't drool as much, helps with depression and it is made them per will neuropathy in my right foot much more bearable

I am still here! A wonderful restaurant in Richmond Virginia is going to do fundraising for ALS. Our restaurant community is amazing!

Blue Cross Blue Shield will take primary if his work employs more than 150 people. If the company is that big Medicare takes second position. Good luck! Hollister

Welcome The best advice I can give you is stay ahead of the disease . File a immediately for disability. Evaluate the house you're in for wheelchair usage. I sat down before I had to because my balance was so bad. After eight years, I was still talking, eating and breathing without assistance...

I will miss you Max. See you on the other side buddy

Re: Help please! I'm not a doctor but it doesn't sound like ALS. I had a weakness for two years before I ever saw twitch. Weakness not pain is the first symptom. Hope you get your answers. Hollister

Still here! Beautiful weather in central Virginia. Voice is getting a little funky but most people can still understand me. Still eating, drinking, breathing and making trouble. My best to you all! Hollister

I think it's important to stay ahead of the disease. A lot of the changes we are forced to make are easier to do before the actual fact occurs. Good luck!

Here but a little disappointed that the hospital bed that arrived yesterday was not the right one. Off to take a serious nap.

Mine is a handicapped toilet on a 7 inch platform.

I am C9 orf 72 positive but de nova, the first occurrence in my family. I am atypical for this gene. I am going on my aid the year with ALS and am still talking, breathing, and eating. We are all very different. The best of luck to you..

Welcome to the club no one wants to be a member of. My ALS started in my right hand in late 2008. Probable diagnosis in 2009. Definitive diagnosis in 2011. Still eating, breathing, and talking. We are all here to help. Hollister

In my former life I was in FDA consultant. They are regulated by Congress and don't get to change the rules as they see fit. The disaster that happened in France is exactly what they worry about . One person died, and others have series neurological deficits . There is neither a biomarker for a...