Recent content by Hjlee

For my mom's case, she was also suspected as lumbar spine problem and suggested to do surgery for it. we went to another hospital for diagnosis and diagnosed as ALS. We went Standford ALS department(?) for second opinion and finally diagnosed as ALS on August 2017.

Hi all, thank you for sharing your story and comments. when i first post about my mom's finger movement, she gained a little bit of movement on her index ,pinky, and thumb fingers. My mom was unable to move any part on her own(except her mouth and eyes). So i just wondered if this was a common...

DeeDee you are right! our family is feeling thankful for everything :)

Hi Karen, thank you for your opinion. Just wondered if this was overall symptom for ALS patient or not :)

Thank you Nikki for sharing your experience! I don't doubt about her diagnosis but was wondering if it was one of the common symptom for ALS patient. Next year will be 3rd year of her diagnosis and I am very concerning about her new symptoms.

Hi all, It's been long time that i havent ask questions on forum. your response really helped me regarding how to treat and take care of my mom. I really appreciate your help. Now i have another question to ask in case you might experienced same thing My mother diagnosed on August 2017. Now...

Hello Karen, Kate, and Laurie Thank you for the reply. We have Oximeter to see her O2 and heart rate. Her O2 is above 97 and her BP is also normal. She done several EKG and heart test (CT, xray) and came out normal. If mom has cardiac issue, we cant find out from CT or xray? We see my mom's...

Hi all, its been long time that i posted in here. (i think last question i asked here was about trach. ) Thanks to you guys, we could prepare everything and learned what we need to know about the trach. For better understanding i want to update my mom's status first. She got the g-tube when...

Hi Patrick, the hospital planning to discharge my mom tomorrow (10/30) but they are discharging my mom without PMV and swallow test. I know it is case by case but how long did it take you to tolerate (?)/ speak with PMV? today is my mom's 10days of staying at hospital but they tried PMV twice...

Hi Sue, the hospital planning to discharge my mom tomorrow (10/30) but they are discharging my mom without PMV and swallow test. I know it is case by case but how long did it take Brian to tolerate (?) speak with PMV?

doctors said secretion coming out stoma can be normal. they found some bacteria but we are waiting for the result if it is normal(?) bacteria or not. she started antibiotics yesterday night and it seems like her needing for suction decreased. they will put her on vent until discharge (next...

thank you for the replies. the chest xray came out clear and they are doing chest CT right now. we did suction before pmv try. i dont remeber when it started but sometimes when my mom swallows salavia, i saw 2-3 times of bubbling. hospital said the pmv is not the priority right now but to...

my mom did the trach on last Friday. she was in ICU for 1.5days and transferred to PCU(progressive care unit). after few hours of her surgery, she started to bleed a lot so had to go back to surgery room to control the bleeding and to chech if everything is okay. next day of surgery, she was...

Patrick, thank you so much for your response. I thought they need to put speech devise during the surgery so i was confused when doctor said they need to figure out the best way for my mom after the surgery. My mom is on trilogy 24/7 now but still able to eat/drink/speak and can even come off...

Patrick, i was reading posts about trach and read your post that you had trach on January. My mom having trach/peg surgery this friday and have some questions. people said one can still talk after trach if one could able to talk before. My mom is in that case. I was wondering about your...