Recent content by hishelper

Well, still no pain and he complains now his left foot is still not "working" right. He says it feels like he lost all circulation in it and wakes up with a pain in his calf he describes as gripping, not sharp. I asked if it was a crampy feeling and he said "kinda". Still no back pain or hip...

Thanks for your advice. I am going to set him up for a massage. Three days later and still no back pain, but he said his foot is numb. He's been walking funny and sitting more than normal. He woke me up last night with "pain" in his ankle area and said it felt like a loss of circulation. I have...

My PAL had recently developed a "pinch" in his lower back. About a week ago. Said pain/tingling went from his hip down to his foot. Sometimes on both sides. He complained of it feeling numb and cramping. It was so bad at times he couldn't walk. We were diagnosed with Bulbar onset in September...

Just an update... Everything I brought up was disregarded....again. I figure if that's what's happening time will tell. So until then we will just deal with it. They did ask him about taking Rilutek. I was wondering about side effects. They said he appeared to be progressing slowly and if...

I'm still struggling with my partners "other symptoms". He is always a level of confused. He gets dizzy when watching someone talk. He gets dizzy often like if someone is moving while talking he can't look at them. Memory has been a slowly progressing problem. I don't know if its recall or...

Can anyone help me understand what progressive supranuclear palsy is and how its different from ALS?

I really appreciate the information. I guess its easy to cross confusion with memory. As far as his situation goes... well I just don't know. I call it memory. In fact we refer to it as "recall" because memories are there but its a constant struggle to recall names, events, phone numbers, what...

He's on Prozac. I am with him 24/7 and I think sometimes I reaching for some other "something" that might be wrong. Isn't that ironic how you wait impatiently for a diagnosis, then you get and want to trade it for something else... Like he will go into a store that he's been in a million times...

My partner was diagnosed in Nov with bulbar onset ALS. He is doing okay right now, however I have some serious concerns that don't seem to be addressed. He has suffered noticeable confusion and memory loss for about 6 months now. It is only getting worse. When I mention it to his nurse or doc...