Recent content by Hevnw8s

When I was tube feeding my mom, I would stand next to her bed and hold the syringe up as if I were making a toast with a glass of wine. This also straightened out the actual tube leading into the body which also helped with the flow...but due to the thickness, it was pretty slow. Don't forget...

Thank you so much. What a wonderful group of people on this forum. I wish there was no need for a website like this but it certainly is a godsend. To all of you who take time out of your day, even when you may be hurting or battling this disease yourself, I thank you.

Thank you for all of your amazing and heatfelt responses. I agree that finding a face to face support group would be very beneficial. I am checking into a church grief group. I posted in another section when I was afraid of having ALS myself. My Neurosurgeon told me he thought I had it so he...

Hello everyone. I am very thankful for this forum. I read a lot of threads here but never post. I'm not sure why I come here, I guess I try to keep my mom fresh in my mind...I don't ever want to forget a thing about her. I cared for her until she passed way in 2010. She was my best friend and...

Thank you everyone for your kind words. They go a long way with me. Please know my prayers and thoughts are with each one of you and your families.

My amazing, beautiful mother got her angel wings on May 28, 2010 at the young age of 59. She was diagnosed with Bulbar ALS on November 17 , 2009 and she lost her fight just 6 months later. I cared for her the best I could without knowing anything about this disease. I was so scared of losing my...

Al, Thank you for your response. I was wondering: They told you it was Chiari Malformation and then ruled it out. What made then think it was Chiari in the beginning. Also, my EMG came back clean..but can that change years from now. I am 43 and my mom was 59 when she was diagnosed and passed...

Hi everyone, I wrote about 2 months ago and I wanted to give an update. My original thread was closed so I started a new one. I lost my mom to ALS and was having symptoms similar to ALS. My Neurosurgeon was concerned about by symptoms and sent me to an ALS Specialist at Barrows Neurological...

Re: Neuro wants to wait... I completely agree with you Skipper66. I am new here but I have read so many of Christopher's posts and the NUMEROUS times he has been asked politely to "stop". I have to say Christopher, you truly are not all there. You need to leave this site and quit posting!

Christopher, I am new to this site. My mom passed away from ALS recently and I took care of her during her journey with ALS. I too have concerning Symptoms but I am getting the necessary testing done after being referred to an ALS Specialist by my Neurosurgeon. I just had to write and ask you...

Hi. Is there anyone still on this thread please?

Hi Nikki, I'm just waiting for my Neurologist at Barrows to send my paperwork to the ALS Specialist at Barrows. Then they will call me to set up an appointment. Until then, I will breathe just as before and wait. Thinking of you all and thank you for your support.

Nikki, I do have to say that I agree with you whole heartedly. I wish I did not know what was coming. When my mom was diagnosed, she did not want to know anything about the disease. She did not want to know what she was facing. That was my job since I was caring for her. I researched and read...

Tillie, I understand asking about the other family members. I wish I knew. I am trying to get in touch with with immediate family on my moms side in Wyoming to see what history I can find out. As far as weakness in my hand. The doctor did not say. He did a few tests and then his demeanor was...

Hi Tillie. I do not know if anyone on mom or dads side of the family had ALS. There has been lost contact with some of the siblings over the years for various reason and I have not checked, as of yet, to find out. My symptoms are a little similar so I'm not sure if I am facing Bulbar or not. I...