Recent content by henkvrielink

people may not know what "off label " use of drugs is. therefore my viagra remark. Forget it.

this is promessing ? https://f1000research.com/articles/6-410/v1 off label, viagra is a perfect example https://www.sevbi.org/

I have no arms and legs functonality, but speaking, swallowing and breathing is no problem yet. I was diagnosed with ALS in April 2014. Since then I have FT 2x half an hour in a week. Plus several "hulpmiddelen" ( things, equipment that support and help, (cannot translate)). Now I am using a...

I live in the Netherlands. Many good places for a perfect vacation here. Are there simmilar places in the USA ? example: can a wheelchair accessable room be booked in every hotel ? can a daycare nurse be hired ? Lets start a thread here.

fyi New therapy halts progression of Lou Gehrig's disease in mice | EurekAlert! Science News

Hi Everyone, Some of us here are from other places in the world. We don't speak English perfectely and on this Forum abbreviations are used intensively. I know Google is my friend, but it is often ambiguous and sometimes it fails. example: PALS has 7 meanings in wikipedia. I still don't know...

I went from Amsterdam to Curacau, a 10 hour flight, No problem with my Permobil C500s wheelchair. Cannot go to the toilet, so do that at home and don't eat. Pee in a bottle, is no problem. enjoy the trip.

Hi everyone, My name is Henk Vrielink, I live in Nijmegen in the Netherlands. My first visit to a neurologist was in aug.2010 bút it took until april 2014 to get the diagnose ALS. I have only problems with arms and legs, I use a wheelchair permanentely now. I am 66, married, 3 children and 6...